HemAware

Featured On HemAware

Why Has Gene Therapy for Hemophilia Been Slow to Catch On?

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.
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What Are Biosimilars? A Guide for People with Bleeding Disorders

Similar to biologic medications, this type of therapy is safe and effective and could expand your access to treatment.
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OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.
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OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best.

Taking Charge, Hemophilia A&B

It took years for Julie Schiffmacher to be diagnosed with von Willebrand disease. Now she’s turning that experience into advocacy.

My Journey

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know.

Hemophilia A&B, Von Willebrand Disease

In 2024, kids and their family members participated in activities inspired by the Olympics, The Amazing Race, and STEM.

Chapter Roundup

Longtime NBDF supporters Kim and Scott Martin are founding donors to the foundation’s venture philanthropy fund.

Advocacy

As the mother of two sons with hemophilia, Delores Johnson-Huber has learned to be a strong advocate.

My Journey

The end of life is something few people want to discuss. But planning can ensure that your wishes are met.

Adults & Aging

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)