HemAware

Featured On HemAware

Why Has Gene Therapy for Hemophilia Been Slow to Catch On?

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.
Read More
What Are Biosimilars? A Guide for People with Bleeding Disorders

Similar to biologic medications, this type of therapy is safe and effective and could expand your access to treatment.
Read More
OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.
Read More

OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

Recent Articles

How to Choose the Right Hemophilia Treatment Options for You

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best.

Taking Charge, Hemophilia A&B

Heavy Periods, No Answers: My Path to a von Willebrand Disease Diagnosis

It took years for Julie Schiffmacher to be diagnosed with von Willebrand disease. Now she’s turning that experience into advocacy.

My Journey

Von Willebrand Disease vs. Hemophilia: Key Differences in Symptoms, Causes, and Treatment

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know.

Hemophilia A&B, Von Willebrand Disease

Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.

Von Willebrand Disease

Ask a Social Worker: How Can I Handle Constant Upsetting News?

Practical ways to stay grounded when constant news and uncertainty feel overwhelming.

Family Matters

Brian Andrew: Working Toward a Brighter Future

Learn how one leader’s unexpected cause has turned into a passion for service.

Community in Action

Waylon Page: “Kids Can Make a Difference”

Diagnosed with a rare bleeding disorder at age 4, Waylon Page has been a powerful advocate and change maker.

My Journey

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC