HemAware

Featured On HemAware

Why Has Gene Therapy for Hemophilia Been Slow to Catch On?

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.
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What Are Biosimilars? A Guide for People with Bleeding Disorders

Similar to biologic medications, this type of therapy is safe and effective and could expand your access to treatment.
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OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.
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OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

Recent Articles

How to Choose the Right Hemophilia Treatment Options for You

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best.

Taking Charge, Hemophilia A&B

Heavy Periods, No Answers: My Path to a von Willebrand Disease Diagnosis

It took years for Julie Schiffmacher to be diagnosed with von Willebrand disease. Now she’s turning that experience into advocacy.

My Journey

Von Willebrand Disease vs. Hemophilia: Key Differences in Symptoms, Causes, and Treatment

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know.

Hemophilia A&B, Von Willebrand Disease

How Parents of Kids with Bleeding Disorders Can Raise Resilient Kids

How to give your child tools not just to manage their condition, but to grow confidently in who they are.

Family Matters

A Global Victory for People with Hemophilia and VWD

Changes to the World Health Organization’s Essential Medicines List represent a major victory for the bleeding disorders community.

Global Focus

How to Balance Household Responsibilities

A child’s bleeding disorder can strain families. Sharing responsibilities, communicating clearly, and seeking support can help couples stay strong and...

Family Matters

Meet Two Trusted Bleeding Disorders Influencers on TikTok

Meet two women using TikTok to inspire and help others in the bleeding disorders community.

Advocacy

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC