Reducing the Burden of Bleeding Disorders

NHF and partners announce an innovative infusion logging tool

The National Hemophilia Foundation (NHF) has announced a two-year pilot program that aims to improve the efficacy of patient infusion logs and reporting through a partnership with Audaire Health Inc., specialty pharmacies and hemophilia treatment centers (HTCs).

Audaire is providing an easy-to-use data tracking tool that can instantly record infusions, bleeds and other adverse events and notify a patient’s care team and specialty pharmacy. NHF hopes the program will show the benefits of patient adherence and the cost savings associated with an integrated data system that operates at multiple touch points along the patient’s care.

Under the program, a pharmacy will dispense factor to the patient with a unique tracking code. After infusion, the patient will simply scan the code to send the information to the Audaire database, where it can be accessed by the pharmacy and the care team.

Michelle Rice, senior vice president of external affairs at NHF, says the system has many advantages: “It greatly reduces the burden of infusion logging on the patient, while also ensuring greater accuracy of data available to the patient’s care team and payers.”

Insurance companies are increasingly insisting on patient logs from either patients themselves or pharmacies before prescriptions can be filled. The Audaire platform will make it easier for all participants to report on adherence. The care team will also have more accurate data about adverse events and the efficacy of treatment regimens.

The Audaire pilot program will engage two specialty pharmacies, BioMatrix Specialty Pharmacy and another to be determined, and three federally recognized HTCs: Cascade Hemophilia Consortium, Henry Ford Hospital Adult Hemophilia and Thrombosis Treatment Center, and Western New York BloodCare. NHF will present initial findings on the program in the fall.

“NHF believes that following prescribed treatments is a key to lowering costs and improving quality of life for people with bleeding disorders,” NHF CEO Val D. Bias says. “We hope that this pilot program can make a real difference in people’s lives.”