In-depth profiles and stories about people in the bleeding disorders community. Sami Rappoport’s Labor of Love The actress and filmmaker hopes to make a film about her grandfather, who had hemophilia A and an inhibitor. Read More Community in Action 2025 Bleeding Disorders Conference Awards of Excellence Honorees Meet the 2025 BDC Awards of Excellence honorees recognized and celebrated for their lasting contributions to the bleeding disorders community. Read More NBDF in Action An Up Close Look at What Goes on at a Hemophilia Treatment Center Learn what goes on at a hemophilia treatment center, which offers a unique and holistic approach to bleeding disorders care. Read More Community in Action A Global Victory for People with Hemophilia and VWD Changes to the World Health Organization’s Essential Medicines List represent a major victory for the bleeding disorders community. Read More Global Focus How World Federation of Hemophilia USA Cares for the Global Community WFH USA advances care worldwide through humanitarian aid, training, advocacy, research, and initiatives supporting bleeding disorders communities. Read More Global Focus Efforts to Ban Copay Accumulator Programs: The Power of State Advocacy Chapters are leading efforts to ban harmful copay policies, protecting patients with chronic conditions from high costs and treatment interruptions. Read More Chapter Roundup Lasting Bleeding Disorders Conference Memories Longtime attendees of NBDF’s annual conference share their favorite memories and why BDC means so much to them. Read More NBDF in Action WFH 2025 Comprehensive Care Summit Brings Global Experts to Dubai The event brings together medical and musculoskeletal (MSK) professionals, bleeding disorders patients, and community advocates. Read More Global Focus In Memory of Neil Frick: Honoring His Dedication to the Bleeding Disorders Community A valued and beloved member of NBDF for more than 25 years, Neil Frick passed away unexpectedly in 2024. Read More NBDF in Action Camps Mean Summer Fun for Everyone In 2024, kids and their family members participated in activities inspired by the Olympics, The Amazing Race, and STEM. Read More Chapter Roundup Raising Sons with Bleeding Disorders: An Advocacy Journey As the mother of two sons with hemophilia, Delores Johnson-Huber has learned to be a strong advocate. Read More My Journey 2024 Bleeding Disorders Conference Awards of Excellence Honorees Every year at the National Bleeding Disorders Foundation’s (NBDF) annual Bleeding Disorders Conference, NBDF presents Awards of Excellence to those... Read More NBDF in Action Load More
