In-depth profiles and stories about people in the bleeding disorders community. How World Federation of Hemophilia USA Cares for the Global Community WFH USA advances care worldwide through humanitarian aid, training, advocacy, research, and initiatives supporting bleeding disorders communities. Read More Global Focus Efforts to Ban Copay Accumulator Programs: The Power of State Advocacy Chapters are leading efforts to ban harmful copay policies, protecting patients with chronic conditions from high costs and treatment interruptions. Read More Chapter Roundup Lasting Bleeding Disorders Conference Memories Longtime attendees of NBDF’s annual conference share their favorite memories and why BDC means so much to them. Read More NBDF in Action WFH 2025 Comprehensive Care Summit Brings Global Experts to Dubai The event brings together medical and musculoskeletal (MSK) professionals, bleeding disorders patients, and community advocates. Read More Global Focus In Memory of Neil Frick: Honoring His Dedication to the Bleeding Disorders Community A valued and beloved member of NBDF for more than 25 years, Neil Frick passed away unexpectedly in 2024. Read More NBDF in Action Camps Mean Summer Fun for Everyone In 2024, kids and their family members participated in activities inspired by the Olympics, The Amazing Race, and STEM. Read More Chapter Roundup Raising Sons with Bleeding Disorders: An Advocacy Journey As the mother of two sons with hemophilia, Delores Johnson-Huber has learned to be a strong advocate. Read More My Journey 2024 Bleeding Disorders Conference Awards of Excellence Honorees Every year at the National Bleeding Disorders Foundation’s (NBDF) annual Bleeding Disorders Conference, NBDF presents Awards of Excellence to those... Read More NBDF in Action NBDF Pairs with Global Partners to Boost Bleeding Disorders Care If you ask Dawn Rotellini, the work of the National Bleeding Disorders Foundation (NBDF) isn’t done until every person in... Read More NBDF in Action Harnessing Community Insights to Shape the Future of Hemophilia B Research Learn how Regeneron is advancing hemophilia B research fueled by the patient experience. Read More Sponsored Content What may be on the horizon for hemophilia treatment? Learn more about what may be upcoming and shared decision making within an evolving treatment landscape. Read More Sponsored Content Decoding Medical Research for the ’Gram You can turn to social media for information on virtually anything, from the private lives of movie stars to makeup... Read More Community in Action Load More
