HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Caring for a Child with a Bleeding Disorder: Babysitter and Caregiver Guide

Here’s what parents can do to help prepare someone to watch their child.
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Caring for a Child with a Bleeding Disorder: Babysitter and Caregiver Guide
Awards of Excellence Honorees at the 2026 Bleeding Disorders Conference

Meet the 2026 BDC Awards of Excellence honorees.
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Recent Articles

Beyond Bleed Counts

Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.

Taking Charge, Adults & Aging

Racing to recovery

From Racing to Recovery and Beyond: An Elite Cyclist’s Journey with Hemophilia

From elite cyclist to engineer, Zack Stein has never let hemophilia hinder his dreams. Neither has his father, Scott.

My Journey

From left to right: Natalie and Samuel, Tara and Jack, Allison & Emilio

See How They Solved Their Preteens’ Biggest Treatment Challenges

You’re no stranger to drama: Adapting to changing needs, schedules, and even personalities is part of being a caregiver to...

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Beyond Bleed Counts

Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.

Taking Charge, Adults & Aging

Racing to recovery

From Racing to Recovery and Beyond: An Elite Cyclist’s Journey with Hemophilia

From elite cyclist to engineer, Zack Stein has never let hemophilia hinder his dreams. Neither has his father, Scott.

My Journey

Hereditary Hemorrhagic Telangiectasia More Than Just Nosebleeds

Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds

Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

Taking Charge

How to Build Your Child’s Confidence When They Have a Bleeding Disorder

How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)