HemAware

Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not infallible. Some issues may only become apparent after a drug has been approved for use. When that happens, post-market safetyRead More

My brother, Sam, and I were born on the same day 23 years ago. I was completely healthy, but he was born with a brain bleed and that’s how the doctors discovered he had hemophilia. People ask if I wasRead More

“The threat to the life of just one hemophiliac would be sufficient reason for us to travel to this meeting. We are here, however, to help the hundreds of thousands of hemophiliacs by adding another organization which can be instrumental,Read More

In September 2017, the National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC) adopted updated guidelines for the treatment of people with bleeding disorders in hospital emergency departments (EDs). The original guidelines were developed after Hurricane Katrina devastated New OrleansRead More