Chapter Roundup

Chapter Roundup

Running a local chapter for the bleeding disorders community is no easy task. Most of the National Hemophilia Foundation’s (NHF’s)...
Ten years ago, the National Hemophilia Foundation’s (NHF’s) relationship with its chapters was fractured. There was little trust—on both sides—and...
Hemophilia of South Carolina (HSC) was at a crossroads in March 2013. The 40-year-old, all-volunteer chapter had been facing some...
Jennifer Chun found very little community support for families of people with bleeding disorders in Oahu, Hawaii, when her son...
A horde of fit athletes will gather ­September 7–8 on the banks of ­Canandaigua Lake in upstate New York to...
If you’re a woman between the ages of 18 and 25 who lives in Wisconsin and has a Facebook account...
Like many parents of children with hemophilia, Louise and Wayne Cobb did not know other families in their situation when...
Advocacy is important to people with bleeding disorders. Many chapters have advocacy days, where members visit the state capitol to...
Approximately 15 social workers from Los Angeles–area hospitals gathered in January at the Hemophilia Foundation of Southern ­California (HFSC) Social...
Lori Keels, executive director of the Louisiana Hemophilia Foundation (LHF), had just learned there was a threat of tornadoes across...
The National Hemophilia Foundation’s network of chapters plays an immensely important role in the bleeding disorders community. Chapters provide programs...
With exotic bird cries filling the air, more than 600 participants in the Florida Hemophilia Association (FHA) Walk meandered down...
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