My Journey

Read the personal stories of individuals with inheritable blood and bleeding disorders in HemAware.

L.A. Aguayo
I was diagnosed with severe hemophilia B at birth. I’m the first person in my family to have a bleeding...
Megan Adediran and her children.
Although my great-grandmother lost four sons to post-circumcision bleeding and my grandmother lost nine sons the same way, I’d never...
Innovative Investigator Research Award Recipient Tam Perry, PhD
Tam Perry, PhD, is the first nonphysician investigator to receive the National Hemophilia Foundation’s (NHF) Innovative Investigator Research Award. A...
Jason Fulton.
Growing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the...
Three members of the bleeding disorders community.
The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...
Jim Christensen: “Hemophilia Directed My Path”
I was diagnosed with severe hemophilia A at around 8 months old. I had problems from birth, mostly black eyes...
Jonathan Hill.
Jonathan Hill’s graphic novel, Blood of the Paladin, opens with the moment he almost died. Traveling alone on business, he...
Robert Butler and his family.
I always felt different from other kids because of my hemophilia. I endured pain nearly 24/7. While some bleeds came...
Headshots of 6 women who have shared their stories about dealing with hemophilia.
For women and girls with bleeding disorders, life is often a struggle to be seen and heard by medical professionals...
Taylor D. Flake-Lawson.
Newly minted lawyer Taylor D. Flake-Lawson is determined to fulfill her dreams.
Michael and Marilyn Tuberdyck
Michael Tuberdyck: I found out I had hepatitis C sometime in the 1990s, which I contracted years before from tainted...
Morgan Hampton, author of Scar Tissue, a comic about his Uncle Rudi
I’ve always known I had hemophilia, even before I knew what it was. Since it’s all I’ve ever known, there...
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