Community in Action

Decoding Medical Research for the ’Gram

You can turn to social media for information on virtually anything, from the private lives of movie stars to makeup...

A Conversation with the BloodStream Podcast Co-Hosts

When Patrick James Lynch launched BloodStream in 2016, he sought to create something that didn’t yet exist: a podcast featuring...

Community in Action

Introducing the Newly Updated Steps for Living Website

At every life stage, a blood or bleeding disorder can lead to new questions and concerns. The Steps for Living...

Community in Action

Joey Smiles at the Pennsylvania State Capitol Complex in Harrisburg.

Voices for Change in the Bleeding Disorders Community

Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia...

Advocacy, Community in Action

Careers and Chronic Conditions Such as Bleeding Disorders

Nick McRae-Cyr knew he wouldn’t be going into construction like the rest of his family. Instead of a high-impact occupation...

Advocacy, Community in Action

The Power of Summer Camps for Kids with Bleeding Disorders

The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special...

75th Anniversary, Community in Action

Black Women with Bleeding Disorders Are Striving to Be Seen and Heard

Ronia Cole, 52, of Redford Township, Michigan, has lived with a bleeding disorder since she was a toddler. “I’d take...

Community in Action

Ask a Social Worker: How Can I Advocate for My Child with Hemophilia so He Gets the Care He Needs?

Ask a Social Worker: What’s the Latest on the Stimate Nasal Spray Recall?

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...

Community in Action, Ask a Social Worker

Bleeding Disorders in Pop Culture

Having a rare disease like hemophilia means you don’t often get to see people who share your disease portrayed in...

Community in Action

4 Creative Fundraising Ideas to Support NHF

For organizations such as the National Hemophilia Foundation (NHF), fundraising is a way to raise awareness and much-needed funds for...

Community in Action

The Next Chapter for Puerto Rico’s Bleeding Disorders Association

Orlando Vives has a severe form of hemophilia B and has been able to lead a relatively normal life, thanks...

NBDF in Action, Community in Action

Black and latinx members of the bleeding disorders community.

Recognizing Racial and Ethnic Health Disparities in Black and Latinx Communities

Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...

Community in Action