Community in Action

Nationwide, the inheritable blood and bleeding disorders community is taking action to raise awareness for the cause. Read more to get involved and get inspired!

Ask a Social Worker: How Can I Advocate for My Child with Hemophilia so He Gets the Care He Needs?
Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...
Bleeding Disorders in Pop Culture
Having a rare disease like hemophilia means you don’t often get to see people who share your disease portrayed in...
4 Creative Fundraising Ideas to Support NHF
For organizations such as the National Hemophilia Foundation (NHF), fundraising is a way to raise awareness and much-needed funds for...
The Next Chapter
Orlando Vives has a severe form of hemophilia B and has been able to lead a relatively normal life, thanks...
Black and latinx members of the bleeding disorders community.
Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...
Three members of the bleeding disorders community.
The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...
Ask a Social Worker.
Welcome to Ask a Social Worker, a new monthly column featuring questions from the community and answers from members of...
How Chapters Are Preparing for a Safer Summer Camp
Summer camp is a time of freedom, exploration and fun. But for families who have children with bleeding disorders such...
A woman walking outside in a bubble.
COVID-19 has disrupted the lives of everyone, including young adults, who have had to navigate classes and commencements, weddings and...
5 Things You Should Know About Giving to NHF
The end-of-the-year giving season is an ideal time to donate to the National Hemophilia Foundation (NHF) and support its research...
Nicole Kaes, member of the National Hemophilia Foundation’s Red Tie Runners, with her husband, Steve.
In the summer of 2019, while training for the New York City marathon, Nicole Kaes of Brooklyn, New York, woke...
6 Virtual Fundraising Ideas to Support NHF
While in-person fundraising events and other opportunities to gather face to face to aid the bleeding disorders community are largely...
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Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.