Family Matters

Factor VII Product Treats Brain Hemorrhages in Inhibitor Patients

Head bleeds, or cranial hemorrhages, can be a terrifying prospect for parents of children with a bleeding disorder. The cause...

Family Matters

Teenage boy with hemophilia and depression

A Dark Cloud

When Robin* was 8 years old, his life started becoming overwhelming. “Everything started coming in on him at once,” says...

Family Matters

Burnout Breakthrough

When you’re the primary caregiver for someone with a bleeding disorder, sometimes it seems like just one more thing will...

Family Matters

Refrigerator for storing hemophilia factor

Safely Storing Factor at Home

Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Self-infusion, prophylactically or...

Hemophilia A&B, Von Willebrand Disease, Family Matters

Making Adherence a Routine

Read about the iPhone app Hemolog. Donna LeBrun has a full-time job as a field service representative for a home...

Family Matters

How to Help Children Cope with their Siblings’ Bleeding Disorder

“I wish I had hemophilia.” A statement like that may sound startling, but it’s not unusual for brothers and sisters...

Family Matters, Family Matters

Needle Know-How

Shai,* now 8 years old, had been receiving almost-daily infusions of factor since he was diagnosed with an inhibitor at...

Family Matters

Fear No Needle!

A child’s fear of and protest against the hemophilia infusion process often create a stressful situation for himself and his...

Family Matters

Traveling with Medication

Hopping a plane can be stressful nowadays, as you deal with long check-in lines, baggage fees and enhanced security. But...

Family Matters

Five Years at the Summit

Six years ago, when Sonji Wilkes gave birth to a baby boy, she learned very quickly that life with little...

Family Matters

Camps for Kids with Bleeding Disorders

See the NHF Camp Directory. Daniel Birgy didn’t want to go to camp. The doctors and nurses at his hemophilia...

Family Matters

When Your Kids with Bleeding Disorders Get Sick

At the National Hemophilia Foundation’s 58th Annual Meeting in Philadelphia in October 2006, a parent stood up in a session...

Family Matters