Family Matters

The Unfamiliar Bleed

See Letter to the Editor in response to this article.

The First Years After Your Child’s Diagnosis

When Mike and Vanessa Sidwell’s son Jaiden was diagnosed with severe hemophilia A four days after birth, the couple was...

Family Matters

A Second Diagnosis

Parents of children with hemophilia and other bleeding disorders are very familiar with the routines and challenges that come with...

Hemophilia A&B, Von Willebrand Disease, Family Matters

Factor VII Product Treats Brain Hemorrhages in Inhibitor Patients

Head bleeds, or cranial hemorrhages, can be a terrifying prospect for parents of children with a bleeding disorder. The cause...

Family Matters

Teenage boy with hemophilia and depression

A Dark Cloud

When Robin* was 8 years old, his life started becoming overwhelming. “Everything started coming in on him at once,” says...

Family Matters

Burnout Breakthrough

When you’re the primary caregiver for someone with a bleeding disorder, sometimes it seems like just one more thing will...

Family Matters

Refrigerator for storing hemophilia factor

Safely Storing Factor at Home

Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Self-infusion, prophylactically or...

Hemophilia A&B, Von Willebrand Disease, Family Matters

Making Adherence a Routine

Read about the iPhone app Hemolog. Donna LeBrun has a full-time job as a field service representative for a home...

Family Matters

How to Help Children Cope with their Siblings’ Bleeding Disorder

“I wish I had hemophilia.” A statement like that may sound startling, but it’s not unusual for brothers and sisters...

Family Matters, Family Matters

Needle Know-How

Shai,* now 8 years old, had been receiving almost-daily infusions of factor since he was diagnosed with an inhibitor at...

Family Matters

Fear No Needle!

A child’s fear of and protest against the hemophilia infusion process often create a stressful situation for himself and his...

Family Matters

Traveling with Medication

Hopping a plane can be stressful nowadays, as you deal with long check-in lines, baggage fees and enhanced security. But...

Family Matters