Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

Advice for parents.
Learning that your child has an inheritable blood or bleeding disorder can cause stress and anxiety for many parents. Your...
Family Matters.
When Laura Elliott adopted Julian at 5 years old, she knew he had hemophilia, but when she brought him home...
Financial planning
When you’re juggling money to manage the day-to-day of paying bills and running a household, the prospect of projecting your...
Handling Opioids with Care
Pain is a fact of life for many people with bleeding disorders, who can experience bleeding into joints. Physical therapy...
Ask a Social Worker: Back-to-School Questions for Kids and Adults
Ask a Social Worker is a new monthly column featuring questions from the community and answers from members of NHF’s...
The last thing you want to think about is having your child get injured. But there are some hazards in...
Three members of the bleeding disorders community.
The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...
How to Create a Hemophilia Emergency Preparedness Plan for Your Child
If your child has a bleeding disorder, you don’t want to wait until an accident or emergency to figure out...
Art depicting father and son setting up a telehealth appointment on the computer.
Michelle Culpepper usually has to drive her son Jayden 45 minutes each way from their home in Farmington, Michigan, to...
Elizabeth Fung.
During her more than 30 years as a social worker at the hemophilia treatment center at Children’s Memorial Hospital in...
A distant shot of a farm in the middle of a remote rural area.
Families living in remote areas face unique challenges for bleeding disorders care. Learn how a few families have managed—and how...
Concept of mother supporting her son
A few years ago, Janet Barone received a phone call from her son, Cameron, that led her to realize her...
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Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.