Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

How to Avoid Caregiver Burnout if You Have Kids with Bleeding Disorders

All moms and dads will admit, even if only to themselves, that parenthood is stressful. But what stresses one parent...

Family Matters

Boy with his father on the first day of school

Back-to-School Advice from Parents in the Bleeding Disorders Community

Follow these tips to see that your child is safe and well supported.

Family Matters

Talking to Teens and Young Adults with Bleeding Disorders About Safer Sex

With abortion access restricted in many states and sexually transmitted infections (STIs) on the rise nationwide, having a conversation with...

Family Matters

What to Do When a Sibling Has a Bleeding Disorder

When a child has a chronic health condition, it affects the whole family. Though it can cause uncertainty and stress...

Family Matters

Transitioning from Pediatric to Adult Care for Bleeding Disorders

For people with bleeding disorders, the transition from pediatric to adult health care is somewhat like the broader transition from...

Family Matters, Taking Charge

How to Manage Kids’ Screen Time

Leigh Myers’ son spent significant time in the hospital for a surgical procedure when he was barely 1. After he...

Family Matters

A drawing depicting a teenager smoking a vape device.

How Vaping Affects Teens with Bleeding Disorders

It’s a pervasive problem facing young people. More than 2 million U.S. students in grades six to 12 vape, with...

Family Matters

Mental Health Crisis for Teens

The last time Jennifer Feldman, R.N., saw Derick, * a then 20-year-old with severe hemophilia A, he asked for help...

Family Matters

Children and Anxiety

Anxiety diagnoses are on the rise. Here’s how to recognize symptoms in your child.

Family Matters

When Your Child with Hemophilia Has a Fear of Needles

Many young children are afraid of needles, and many parents may have anxiety about giving their child infusions, especially in...

Family Matters

Parents in the Bleeding Disorders Community Share Their Best Advice

HemAware asked parents for their best advice on what has helped them navigate their children’s bleeding disorders in the first...

Family Matters

Young Pioneers in the Bleeding Disorders Community

When Laura Elliott adopted Julian at 5 years old, she knew he had hemophilia, but when she brought him home...

Family Matters