Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

Shai,* now 8 years old, had been receiving almost-daily infusions of factor since he was diagnosed with an inhibitor at...
A child’s fear of and protest against the hemophilia infusion process often create a stressful situation for himself and his...
Hopping a plane can be stressful nowadays, as you deal with long check-in lines, baggage fees and enhanced security. But...
Six years ago, when Sonji Wilkes gave birth to a baby boy, she learned very quickly that life with little...
See the NHF Camp Directory. Daniel Birgy didn’t want to go to camp. The doctors and nurses at his hemophilia...
At the National Hemophilia Foundation’s 58th Annual Meeting in Philadelphia in October 2006, a parent stood up in a session...
For this family portrait, you don’t even need a camera. All you need is a computer and some health history...
See the NHF Camp Directory.
They shoot hoops, teach kids the right way to do chores and bake homemade goodies to celebrate special occasions. And...
Phillip Fletcher has seen firsthand how pain can tear a family apart. He’s convinced the pain he has suffered his...
All marriages come with challenges—especially once children enter the picture. When a child has a bleeding disorder, those challenges can...
Finding reputable day care is one of a family’s most important decisions. For a family with children who have been...
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)