Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

For this family portrait, you don’t even need a camera. All you need is a computer and some health history...
See the NHF Camp Directory.
They shoot hoops, teach kids the right way to do chores and bake homemade goodies to celebrate special occasions. And...
Phillip Fletcher has seen firsthand how pain can tear a family apart. He’s convinced the pain he has suffered his...
All marriages come with challenges—especially once children enter the picture. When a child has a bleeding disorder, those challenges can...
Finding reputable day care is one of a family’s most important decisions. For a family with children who have been...
Growing kids. Aging parents. Adult children in the middle. People raising their children while coordinating care for their parents constitute...
Eileen Bostwick knows that raising a toddler with severe hemophilia A means constantly trying to strike a balance between encouraging...
Adoption experiences in the bleeding disorders community are as rich and varied as the families themselves. Some parents affected by...
Rachel Miller, 21, who has von Willebrand disease, attended two years of community college and lived at home before enrolling...
When Sherry Johnson’s* son, Mark*, was three years old, he had a joint bleed and was brought to his local...
Update, March 2013: The American Academy of Pediatrics published a clinical report, " Evaluation for Bleeding Disorders in Suspected Child...
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Contact HANDI, NBDF's resource center for additional information on bleeding disorders.