Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

Six years ago, when Sonji Wilkes gave birth to a baby boy, she learned very quickly that life with little...
See the NHF Camp Directory. Daniel Birgy didn’t want to go to camp. The doctors and nurses at his hemophilia...
At the National Hemophilia Foundation’s 58th Annual Meeting in Philadelphia in October 2006, a parent stood up in a session...
For this family portrait, you don’t even need a camera. All you need is a computer and some health history...
See the NHF Camp Directory.
They shoot hoops, teach kids the right way to do chores and bake homemade goodies to celebrate special occasions. And...
Phillip Fletcher has seen firsthand how pain can tear a family apart. He’s convinced the pain he has suffered his...
All marriages come with challenges—especially once children enter the picture. When a child has a bleeding disorder, those challenges can...
Finding reputable day care is one of a family’s most important decisions. For a family with children who have been...
Growing kids. Aging parents. Adult children in the middle. People raising their children while coordinating care for their parents constitute...
Eileen Bostwick knows that raising a toddler with severe hemophilia A means constantly trying to strike a balance between encouraging...
Adoption experiences in the bleeding disorders community are as rich and varied as the families themselves. Some parents affected by...
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Contact The Neil Frick Resource Center (NFRC)