Take charge and become your best self-advocate! Get tips and tricks here. Transitioning from Pediatric to Adult Care for Bleeding Disorders For people with bleeding disorders, the transition from pediatric to adult health care is somewhat like the broader transition from...Read More Family Matters, Taking Charge Bypassing Agents for Hemophilia One of the most problematic issues that can occur with hemophilia are inhibitors—a complication that happens when the body’s immune...Read More Hemophilia A&B, Taking Charge Overcoming Loneliness: Strategies for Better Mental Health As we grow older, we’re more likely to experience loneliness. Because of hearing loss, lack of mobility, limited social support...Read More Taking Charge Better Bleeding Disorders Care Begins with You When it comes to chronic and life-changing medical conditions, better care starts with better research. Until a few years ago...Read More Taking Charge Record-Keeping Tips for the Bleeding Disorders Community People with hemophilia know that it requires effort and diligence to maintain a healthy lifestyle while living with a bleeding...Read More Taking Charge What’s the Difference Between Plasmapheresis and Therapeutic Plasma Exchange? When people with hemophilia develop an inhibitor—about 1/3 to 1/5 of people with severe hemophilia A and 1% to 4%...Read More Taking Charge Are Nasal Swabs in At-Home COVID Tests Safe for People with Bleeding Disorders? It’s 2022 and COVID-19 is, unfortunately, still around. Of course, things have gotten better, but the pandemic still trudges along...Read More Taking Charge Protect Cognitive Health and Help Prevent Age-Related Decline Eat right. Exercise. Get enough sleep. You know what’s needed to keep your body healthy as you age. But what...Read More Taking Charge Handling Opioids with Care Pain is a fact of life for many people with bleeding disorders, who can experience bleeding into joints. Physical therapy...Read More Taking Charge, Family Matters How to Create a Hemophilia Emergency Preparedness Plan for Your Child If your child has a bleeding disorder, you don’t want to wait until an accident or emergency to figure out...Read More Family Matters, Taking Charge Bringing Health Plans and Providers Together Bleeding disorders frequently rank among the highest-cost conditions, largely because of treatment costs. While patients are exposed to some of...Read More Taking Charge, Blood Safety Don’t Delay Necessary Medical Care During the Pandemic More than 40% of Americans have delayed or avoided medical care during the COVID-19 pandemic, according to the Centers for...Read More Taking Charge Load More
