Take charge and become your best self-advocate! Get tips and tricks here. How PTSD Can Affect People with Hemophilia and Other Bleeding Disorders Justin Levesque had no physical symptoms of hemophilia, but he still felt unwell. “I was just getting nauseous all the... Read More Taking Charge For People with Bleeding Disorders, Adherence Is Still a Problem When Sean Pentz was growing up, his mother made sure he received his infusions of clotting factor three times a... Read More Taking Charge Apps and Tools to Help with Treatment Adherence When something becomes routine, even something as important as a preventive clotting factor infusion, it can also become easy to... Read More Taking Charge How to Make the Most of Your HTC Visit Oprah Winfrey may have coined the self-improvement motto, “Live your best life,” but it caught on because it’s something almost... Read More Taking Charge Protect Yourself From the Seasonal Spike of COVID-19 First, the bad news: Respiratory viruses, including the latest variants that cause COVID-19, are spiking across the U.S. as colder... Read More Taking Charge Transitioning from Pediatric to Adult Care for Bleeding Disorders For people with bleeding disorders, the transition from pediatric to adult health care is somewhat like the broader transition from... Read More Family Matters, Taking Charge Bypassing Agents for Hemophilia One of the most problematic issues that can occur with hemophilia are inhibitors —a complication that happens when the body’s... Read More Hemophilia A&B, Taking Charge Overcoming Loneliness: Strategies for Better Mental Health As we grow older, we’re more likely to experience loneliness. Because of hearing loss, lack of mobility, limited social support... Read More Taking Charge Better Bleeding Disorders Care Begins with You When it comes to chronic and life-changing medical conditions, better care starts with better research. Until a few years ago... Read More Taking Charge Record-Keeping Tips for the Bleeding Disorders Community People with hemophilia know that it requires effort and diligence to maintain a healthy lifestyle while living with a bleeding... Read More Taking Charge What’s the Difference Between Plasmapheresis and Therapeutic Plasma Exchange? When people with hemophilia develop an inhibitor—about 1/3 to 1/5 of people with severe hemophilia A and 1% to 4%... Read More Taking Charge Are Nasal Swabs in At-Home COVID Tests Safe for People with Bleeding Disorders? It’s 2022 and COVID-19 is, unfortunately, still around. Of course, things have gotten better, but the pandemic still trudges along... Read More Taking Charge Load More
