Taking Charge

Taking Charge

Take charge and become your best self-advocate! Get tips and tricks here.

Bone health isn’t necessarily top of mind — especially at younger ages — but it should be. People with hemophilia...
Justin Levesque had no physical symptoms of hemophilia, but he still felt unwell. “I was just getting nauseous all the...
When Sean Pentz was growing up, his mother made sure he received his infusions of clotting factor three times a...
When something becomes routine, even something as important as a preventive clotting factor infusion, it can also become easy to...
Oprah Winfrey may have coined the self-improvement motto, “Live your best life,” but it caught on because it’s something almost...
First, the bad news: Respiratory viruses, including the latest variants that cause COVID-19, are spiking across the U.S. as colder...
For people with bleeding disorders, the transition from pediatric to adult health care is somewhat like the broader transition from...
One of the most problematic issues that can occur with hemophilia are inhibitors —a complication that happens when the body’s...
As we grow older, we’re more likely to experience loneliness. Because of hearing loss, lack of mobility, limited social support...
When it comes to chronic and life-changing medical conditions, better care starts with better research. Until a few years ago...
People with hemophilia know that it requires effort and diligence to maintain a healthy lifestyle while living with a bleeding...
When people with hemophilia develop an inhibitor—about 1/3 to 1/5 of people with severe hemophilia A and 1% to 4%...
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Contact HANDI, NBDF's resource center for additional information on bleeding disorders.