Advice for Parents Sending a Child with a Bleeding Disorder to Camp for the First Time Tips for parents on how to prepare their child with a bleeding disorder for their first sleepaway camp experience. Read More Family Matters Three Tips on How to Open Up to Your Comprehensive Care Team Being open and honest with providers can be good for your health. Here are tips to help you do that. Read More Taking Charge, Adults & Aging How to Prepare for the End of Life: A Guide for People With Bleeding Disorders The end of life is something few people want to discuss. But planning can ensure that your wishes are met. Read More Adults & Aging 6 Groups Every Bleeding Disorders Support Network Needs A social worker shares six groups to consider for your support network when navigating a bleeding disorder. Read More Taking Charge, Adults & Aging NYLI Member Shanthi Hegde: Empowered by Community Shanthi Hegde doesn’t like to be uninformed. The biology major at Northeastern University in Boston who plans to be a... Read More Generation Next How to Cope with Seasonal Depression When You Have a Bleeding Disorder In many parts of the country, the changing leaves and falling temperatures of winter signal a time of joy, full... Read More Taking Charge, Adults & Aging Why Hemophilia B Is Called Christmas Disease From the beginning, the term “Christmas Disease” caught people off guard. When readers of the British Medical Journal stumbled on... Read More HIV, Hemophilia A&B, Family Matters 7 Gift Ideas for Someone Who Has a Bleeding Disorder A great gift reflects both care and understanding, though finding that balance isn’t always easy. It can be especially tricky... Read More Family Matters Ryan White’s Legacy Continues in Poster Child, a Documentary of His Fight with AIDS Ryan White, of Kokomo, Indiana, has long been an iconic figure in the history of bleeding disorders advocacy. Born with... Read More HIV, Generation Next Choosing a Day Care: A Guide for Parents of Children with Bleeding Disorders Choosing a day care provider can be difficult for any parent. But Lakeisha Parker of Bryant, Arkansas, had more considerations... Read More Family Matters “My Baby Has Hemophilia. Can They Still Live a Normal Life?” New moms and dads often find themselves wishing their babies arrived with instruction books. Spoiler alert: They don’t. Instead, parents... Read More Family Matters Hemophilia and Candy: 5 Ways to Have a Healthy, Happy Halloween Halloween is a fun holiday for children, centered around spooky decorations, imaginative costumes, and copious amounts of candy. With Halloween... Read More Family Matters Load More
