Community-Pulse

Community-Pulse

At NHF our mission is to serve those affected by all inheritable bleeding disorders. Read in-depth profiles and stories about people in the bleeding disorders community.

A satellite photo of Hurricane Harvey in the Gulf of Mexico in 2017.

¿Está preparado si ocurre un desastre natural?

Miguel Escobar, MD, Director Médico del Centro de Hemofilia y Trombofilia (Hemophilia and Thrombophilia Center, HTC) de los estados del...
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Community in Action
A satellite photo of Hurricane Harvey in the Gulf of Mexico in 2017.

Are You Ready if a Natural Disaster Strikes?

Hurricanes, wildfires and more test the bleeding disorders community’s preparation for emergencies.
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Community in Action
Sue Martin saves her speech for posterity in the NHF time capsule, which will be opened in 30 years during the 100th NHF Bleeding Disorders Conference.

A Look Back at NHF’s 70th Anniversary Bleeding Disorders Conference

More than 2,800 people in the bleeding disorders community gathered from October 11-13 in Orlando, Florida, to gain valuable knowledge...
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NBDF in Action
Milo Cedeno and Michael Tarantino, MD at the NHF Red Tie Soiree held May 9 at Current at Chelsea Piers in New York

Celebrar el pasado y seguir hacia adelante en la Velada de Corbatas Rojas de la NHF

Más de 250 asistentes apoyaron al CEO de la Fundación Nacional de Hemofilia (NHF), Val D. Bias, mientras ofreció un...
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NHF in Action
Milo Cedeno and Michael Tarantino, MD at the NHF Red Tie Soiree held May 9 at Current at Chelsea Piers in New York

Celebrating the Past and Forging Ahead at NHF’s Red Tie Soiree

More than 250 attendees stood with National Hemophilia Foundation (NHF) CEO Val D. Bias as he raised a glass to...
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NBDF in Action
Boy talks with Congressional staffer during NHF's Washington Days 2018

Detalles de los Washington Days de 2018

El 9 de marzo, más de 500 personas con trastornos hemorrágicos y sus familias se pusieron sus lazos rojos y...
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NHF in Action, Insurance, Advocacy
Team NHF's Half-Marathon Team

Impulsado por la inspiración: Las historias detrás del equipo del medio maratón de la NHF

El 18 de marzo, nueve atletas se ataron las zapatillas para correr 13.1 millas en Manhattan y ayudar a las...
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NHF in Action
Illustration of doctors and community members in Guam

La atención de los trastornos hemorrágicos en Guam muestra que ningún HTC es una isla

Uno de los Centros de Tratamiento de Hemofilia (HTC, por sus siglas en inglés) probablemente menos conocidos, y sin duda...
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Community in Action
Illustration of doctors and community members in Guam

Bleeding Disorders Care in Guam Shows That No HTC Is an Island

One of the probably lesser known—and certainly most far-flung—of the 140-plus federally designated US hemophilia treatment centers (HTCs) will soon...
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Community in Action
Portrait of Christopher Statton

Las becas brindan una mano amiga a los estudiantes

El instituto universitario Juniata College es una pequeña escuela de artes liberales en Huntingdon, Pensilvania, a unas 125 millas al...
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Community in Action, Hemophilia A&B, HIV
Portrait of Christopher Statton

Scholarship Provides a Helping Hand to Students

Juniata College is a small liberal arts school in Huntingdon, Pennsylvania, about 125 miles east of Pittsburgh. The college was...
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Community in Action, Hemophilia A&B, HIV
A team of hackers at the Hacking Hemophilia event at MIT in October 2017

Hackeo de la hemofilia

GroupMe. Botón “me gusta” de Facebook. Carousell. Estas son solo algunas de las innovaciones que surgieron de los “hackatones”: conferencias...
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NHF in Action
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