Community-Pulse

Community-Pulse

At NHF our mission is to serve those affected by all inheritable bleeding disorders. Read in-depth profiles and stories about people in the bleeding disorders community.

A team of hackers at the Hacking Hemophilia event at MIT in October 2017

Hacking Hemophilia

GroupMe. Facebook’s “like” button. Carousell. These are just a few of the innovations that have emerged out of hackathons—collaborative, intensive...
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NBDF in Action
Boy talks with Congressional staffer during NHF's Washington Days 2018

Inside Washington Days 2018

On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared...
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NBDF in Action, Insurance, Advocacy
Team NHF's Half-Marathon Team

Fueled by Inspiration: The Stories Behind NHF’s Half-Marathon Team

On March 18, nine athletes laced up their sneakers to run 13.1 miles in Manhattan and help people with bleeding...
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NBDF in Action
Chris Bombardier

Chris Bombardier: Alcanzando nuevas alturas

Cómo el alpinista Chris Bombardier perseveró para convertirse en la primera persona con hemofilia en alcanzar la cumbre del Monte...
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Taking Charge, My Journey
The bleeding disorders community gathered in Chicago for NHF's 69th Annual Meeting in August 2017

2017 NHF Un vistazo a la reunión anual

La 69° reunión anual de la Fundación Nacional de la Hemofilia (National Hemophilia Foundation, NHF), realizada en Chicago, comenzó con...
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NHF in Action
Chris Bombardier

Chris Bombardier: Reaching New Heights

How mountaineer Chris Bombardier persevered to become the first person with hemophilia to summit Mount Everest.
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Taking Charge, My Journey
Daniela Delgado and her parents.

La Velada de Corbatas Rojas de la NHF 2017

La Velada de Corbatas Rojas (Red Tie Soiree) de la Fundación Nacional para la Hemofilia (National Hemophilia Foundation, NHF) recaudó...
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NHF in Action
Daniela Delgado and her parents.

NHF 2017 Red Tie Soiree

Gala raises funds and honors outstanding individuals.
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NBDF in Action
The Hemophilia Memorial at the National AIDS Memorial Grove in Golden Gate Park opened in September 2017

El monumento honra a la comunidad hemofílica afectada con SIDA

En 1990, Ryan White, un joven hemofílico de 18 años murió de SIDA. Su madre, Jeanne White-Ginder se sentía sola...
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Community in Action
The Hemophilia Memorial at the National AIDS Memorial Grove in Golden Gate Park opened in September 2017

Memorial Honors the Hemophilia Community Affected by AIDS

In 1990, Ryan White, an 18-year-old with hemophilia, passed away from AIDS. His mother, Jeanne White-Ginder, felt alone in her...
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Community in Action
NHF Philanthropist of the Year: Gary Farro

Filántropo de la FNH del año: Gary Farro

Gary Farro tuvo una visión. Farro, un Director General Senior y de relaciones en el First Republic Bank en la...
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Community in Action
NHF Philanthropist of the Year: Gary Farro

NHF Philanthropist of the Year: Gary Farro

Farro works to raise money and awareness for people with bleeding disorders.
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Community in Action
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