Community-Voices

Community-Voices

People with blood or bleeding disorders and their family members are at the heart of the National Hemophilia Foundation. Read in-depth profiles and stories about people in the bleeding disorders community.

Members of the Cheatham and Nivin families.

A Church’s Expanding Circle of Support for Bleeding Disorders

When one of its own was diagnosed with hemophilia, an Oklahoma congregation sprang into action.
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Community in Action
Jacey Gonzalez, Jeanne White-Ginder and NHF CEO Val D. Bias

Honoring the Stars of the Bleeding Disorders Community

Every year, the National Hemophilia Foundation (NHF) honors some of the brightest stars in the bleeding disorders community. From providers...
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NBDF in Action
Collage of portraits of people

Aliados de la comunidad de trastornos hemorrágicos

La comunidad de trastornos hemorrágicos tiene la fortuna de recibir el apoyo de muchas personas que no tenían una conexión...
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Community in Action
Collage of portraits of people

Allies of the Bleeding Disorder Community

People with no prior connection to bleeding disorders become passionate advocates.
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Community in Action
Photo of Tamar Mitchell

Cómo afrontar la hemofilia a través de la música

La música siempre ha sido una enorme parte de mi vida. Me ha ayudado a superar las épocas más difíciles...
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My Journey
Photo of Tamar Mitchell

Coping with Hemophilia Through Music

"There’s nothing anyone can throw at me that I can’t handle."
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My Journey
Dan Bond

El cielo es el límite

Nací con hemofilia B severa en Galveston, Texas, hace 64 años. Antes de nacer, los médicos conocían los importantes antecedentes...
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My Journey
Dan Bond

The Sky’s the Limit

A man with severe hemophilia B and his soaring ambition.
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My Journey
Nikole Skappe (second from right) with friends at Second Chance at Prom.

Red Tie Affair (La corbata roja)

Nikole Scappe, que padece la enfermedad von Willerbran (EvW), organizó una recaudación para la Fundación Nacional de Hemofilia en apoyo...
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My Journey
Nikole Skappe (second from right) with friends at Second Chance at Prom.

Red Tie Affair

Nikole Scappe, who has von Willebrand disease (VWD), held a fundraiser for the National Hemophilia Foundation in support of the...
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My Journey
Kai Griffith in white knit sweater, playing with toy truck

Untapped ‘Friend-Raising’ Abilities

Driven by love for her young grandson, Trish Griffith, of Knoxville, Tennessee, turned her network of friends and family members...
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My Journey

Singing From His Heart

In each issue of HemAware , we spotlight someone in the bleeding disorders community. This issue, we speak with LaRon...
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My Journey
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