Hemophilia A&B

Treatment Breakthroughs

The marketing terms “new and improved” and “longer lasting” are not limited to the latest brand of chewing gum. They...

Novel Technologies, Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease

The same material that helps stop nasty nosebleeds also curtails cuts. In June 2011, NasalCEASE ®, an over-the-counter product manufactured...

Hemophilia A&B, Von Willebrand Disease

Alicia Unger is awake by 6:30 a.m. every day. She has only an hour or two to squeeze in a...

Hemophilia A&B, Family Matters

The “captain of the school army” had Dylan Edwards in his sights. He ordered his “soldiers” to chase Dylan, who...

Hemophilia A&B, Von Willebrand Disease, Taking Charge, Family Matters

Hidden veins. Worn-out veins. Blown veins. People with hemophilia who infuse factor products feel the frustration from uncooperative veins. One...

Hemophilia A&B

By now, most people with hemophilia and other bleeding disorders and their families know the Patient Protection and Affordable Care...

Hemophilia A&B, Advocacy

An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical...

Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge

Growing older with hemophilia can feel less like the golden age and more like the rust years. Stiff joints, heart...

Adults & Aging, Hemophilia A&B

The World Federation of Hemophilia (WFH) held its first Global Research Forum on March 22–23, 2011, in Montreal, Canada. Physicians...

Hemophilia A&B, Global Focus

Parents of children with hemophilia and other bleeding disorders are very familiar with the routines and challenges that come with...

Hemophilia A&B, Von Willebrand Disease, Family Matters

Despite hemophilia’s very visible symptoms—bleeding and bruising— the disorder has been a hidden one for a long time.

Hemophilia A&B, Advocacy

Like thousands of other people with hemophilia A, 17-year-old Sean O’Connor lacks the genetic machinery to produce a working version...

Hemophilia A&B