Hemophilia A&B

Growing Older Proactively

Growing older with hemophilia can feel less like the golden age and more like the rust years. Stiff joints, heart...

Adults & Aging, Hemophilia A&B

WFH Global Research Forum

The World Federation of Hemophilia (WFH) held its first Global Research Forum on March 22–23, 2011, in Montreal, Canada. Physicians...

Hemophilia A&B, Global Focus

A Second Diagnosis

Parents of children with hemophilia and other bleeding disorders are very familiar with the routines and challenges that come with...

Hemophilia A&B, Von Willebrand Disease, Family Matters

Two teenagers watch the TV show Royal Pains.

Hemophilia Takes Center Stage

Despite hemophilia’s very visible symptoms—bleeding and bruising— the disorder has been a hidden one for a long time.

Hemophilia A&B, Advocacy

Hemophilia Prophylaxis Leads to Joint Health

Like thousands of other people with hemophilia A, 17-year-old Sean O’Connor lacks the genetic machinery to produce a working version...

Hemophilia A&B

Head Bleeds and Hemophilia

Hogan Lust started walking last month. He’s two and a half years old. For the tow-headed toddler from Tucson, that...

Hemophilia A&B

Study: High-Impact Activity Doesn't Increase Joint Bleeds

“PF Flyers make you run faster and jump higher,” boasted an old advertisement for Keds ® sneakers. Turns out those...

Hemophilia A&B, Fitness & Nutrition

Doctor with mom and little girl at a hemophilia treatment center

Hemophilia Treatment Centers 101

Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other...

Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge, Advocacy

All About Nosebleeds

People with bleeding disorders get nosebleeds, which can usually be treated at home. But it’s a good idea to know...

Hemophilia A&B, Von Willebrand Disease

Plasma-Derived Factor Is Safer Than Ever

When the first plasma-derived clotting factor concentrates were introduced in the late 1960s and 1970s, they revolutionized the treatment of...

Hemophilia A&B, Blood Safety

Refrigerator for storing hemophilia factor

Safely Storing Factor at Home

Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Self-infusion, prophylactically or...

Hemophilia A&B, Von Willebrand Disease, Family Matters

Manage Hemophilia with a Personal Health Record

When Michael Schultz was 10 years old, his parents put him in charge of self-infusions to manage his moderate hemophilia...

Hemophilia A&B, Taking Charge