Novel Technologies

Why Has Gene Therapy for Hemophilia Been Slow to Catch On?

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.

Novel Technologies, Hemophilia A&B

What Are Biosimilars? A Guide for People with Bleeding Disorders

Similar to biologic medications, this type of therapy is safe and effective and could expand your access to treatment.

Hemophilia A&B, Novel Technologies

OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.

Women's Bleeding Disorders, Novel Technologies, Alternative Treatments

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control...

Hemophilia A&B, Novel Technologies

Gene Therapy Candidates Face ‘Once in a Lifetime’ Choice

You only get one chance. Cutting-edge gene therapies that show the most promise for a permanent solution to hemophilia rely...

Novel Technologies

The Future of Digital Health

Roshni Kulkarni, M.D., recalls a time when a patient was attacked by a wild turkey and wanted advice about whether...

Novel Technologies

An artist's rendering of a patient speaking with doctors on video chat.

Telehealth for the Bleeding Disorders Community

Remote work, remote learning, remote meetups with friends — Americans have gotten much more comfortable conducting critical (and noncritical) tasks...

Novel Technologies

Gene Therapy and Bleeding Disorders: Where Are We Now, and What’s on the Horizon?

Since 1966, leading immunologists, clinicians and researchers in gene therapy have been convening every one to three years to discuss...

Novel Technologies

An Update on Gene Therapy for Hemophilia

After several decades of research, gene therapy for hemophilia is moving closer to becoming a reality. One of the most...

Novel Technologies

Shared Decision-Making for Bleeding Disorders

Brandon Downey, 32, a nurse in Chicago with severe hemophilia A, has switched treatments several times over the last decade...

Novel Technologies

A World of Difference for People with Bleeding Disorders

Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...

Novel Technologies, Surgery & Transplants, Global Focus

Should People with Hemophilia Get the COVID-19 Vaccine?

When the Pfizer-BioNTech and Moderna COVID-19 vaccines became publicly available in December 2020, healthcare professionals around the country called them...

Novel Technologies