Novel Technologies

Gene Therapy Candidates Face ‘Once in a Lifetime’ Choice

You only get one chance. Cutting-edge gene therapies that show the most promise for a permanent solution to hemophilia rely...

Novel Technologies

The Future of Digital Health

Roshni Kulkarni, M.D., recalls a time when a patient was attacked by a wild turkey and wanted advice about whether...

Novel Technologies

An artist's rendering of a patient speaking with doctors on video chat.

Telehealth for the Bleeding Disorders Community

Remote work, remote learning, remote meetups with friends — Americans have gotten much more comfortable conducting critical (and noncritical) tasks...

Novel Technologies

Gene Therapy and Bleeding Disorders: Where Are We Now, and What’s on the Horizon?

Since 1966, leading immunologists, clinicians and researchers in gene therapy have been convening every one to three years to discuss...

Novel Technologies

An Update on Gene Therapy for Hemophilia

After several decades of research, gene therapy for hemophilia is moving closer to becoming a reality. One of the most...

Novel Technologies

Shared Decision-Making for Bleeding Disorders

Brandon Downey, 32, a nurse in Chicago with severe hemophilia A, has switched treatments several times over the last decade...

Novel Technologies

A World of Difference for People with Bleeding Disorders

Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...

Novel Technologies, Surgery & Transplants, Global Focus

Should People with Hemophilia Get the COVID-19 Vaccine?

When the Pfizer-BioNTech and Moderna COVID-19 vaccines became publicly available in December 2020, healthcare professionals around the country called them...

Novel Technologies

Picture of man outside in athletic gear checking his smartphone.

Helpful Tools to Keep Track of Your Hemophilia Treatments

When you have a bleeding disorder, staying on top of treatment regimens can prevent devastating consequences. Adherence is associated with...

Novel Technologies

Medical professionals working on gene therapy treatments

Gene Therapy: The New Reality

After decades of research, gene therapy for hemophilia is here—but questions remain.

Novel Technologies

What You Should Know About Telehealth Services

Telemedicine can bridge the distance between doctor and patients.

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Pushing the Boundaries of Treatment for Hemophilia A and B

Last September, scientists, doctors, advocates and people with hemophilia gathered in Washington, DC, for the National Hemophilia Foundation’s (NHF) 15th...

Novel Technologies