Novel Technologies

Novel Technologies

Novel technologies have the potential to change inheritable blood and bleeding disorders forever. Read about gene therapy and other developments.

An Update on Gene Therapy for Hemophilia
After several decades of research, gene therapy for hemophilia is moving closer to becoming a reality. One of the most...
Shared decision making
Brandon Downey, 32, a nurse in Chicago with severe hemophilia A, has switched treatments several times over the last decade...
Glenn Pierce, MD, PhD
Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...
Should People with Hemophilia Get the COVID-19 Vaccine?
When the Pfizer-BioNTech and Moderna COVID-19 vaccines became publicly available in December 2020, healthcare professionals around the country called them...
Picture of man outside in athletic gear checking his smartphone.
When you have a bleeding disorder, staying on top of treatment regimens can prevent devastating consequences. Adherence is associated with...
Medical professionals working on gene therapy treatments
After decades of research, gene therapy for hemophilia is here—but questions remain.
Telemedicine enhances patient care
Telemedicine can bridge the distance between doctor and patients.
Pushing the Boundaries of Treatment for Hemophilia A and B
Last September, scientists, doctors, advocates and people with hemophilia gathered in Washington, DC, for the National Hemophilia Foundation’s (NHF) 15th...
Illustration of researchers, regulators and community members involved in bleeding disorders research
In May 2018, more than 200 people representing scientific researchers, hemophilia patients, advocates, clinicians and the pharmaceutical industry gathered in...
Ang Li, MD, of the Bloodworks Northwest/Washington Center for Bleeding Disorders at the University of Washington (UW) in Seattle, is the 39th NHF-Shire clinical fellow.
Welcoming a new NHF-Shire clinical fellow.
6 Key Questions to Ask Before Taking Part in a Clinical Trial
Advances in bleeding disorders care rely on research, but is taking part in a study right for you?
Hand with Gene
Assessing the My Life, Our Future Genotyping Project A recent article in the journal Haemophilia analyzed the My Life, Our...
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Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.