Rare Bleeding Disorders

Rare Bleeding Disorders

What exactly is a rare bleeding disorder, and what makes a bleeding disorder rare? Get the answers in HemAware.

Glanzmann’s Thrombasthenia and Bernard-Soulier Syndrome
Most bleeding disorders are relatively rare. Even the most common bleeding disorder, von Willebrand disease, affects just 1 out of...
Blood Clots
The blood clotting process is a multistep activity known as coagulation. When the entire coagulation process works properly, blood holds...
Do You Know the Signs of These 6 Types of Bleeds?
When people have bleeding disorders, their blood fails to clot like it should when they have external or internal bleeding...
The Magee family
People with rare bleeding disorders face challenges, but increasingly they are facing them together.
Joint bleed
It's the most common type of bleed for people with hemophilia.
Rare Balloons
A number of rare bleeding disorders require specialized care.
FDA approves new drugs for VWD, hemophilia A and HIV-1
FDA approves new drugs for VWD, hemophilia A and HIV-1
The X Factor
Two women’s experiences with factor X deficiency.
Factoring in Factor X
Coagadex is the first FX concentrate available.
For the past 10 years, people with hemophilia and their family members and caregivers have come together for a three-day...
Patients with factor XIII (FXIII) deficiency, the rarest bleeding dis­order—occurring in 1 in 5 million births—have a new treatment option...
The marketing terms “new and improved” and “longer lasting” are not limited to the latest brand of chewing gum. They...
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Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.