Rare Bleeding Disorders

Rare Bleeding Disorders

People with rare bleeding disorders face challenges, but increasingly they are facing them together.
What's going on when your blood doesn't clot properly.
It's the most common type of bleed for people with hemophilia.
A number of rare bleeding disorders require specialized care.
FDA approves new drugs for VWD, hemophilia A and HIV-1
Two women’s experiences with factor X deficiency.
Coagadex is the first FX concentrate available.
For the past 10 years, people with hemophilia and their family members and caregivers have come together for a three-day...
Patients with factor XIII (FXIII) deficiency, the rarest bleeding dis­order—occurring in 1 in 5 million births—have a new treatment option...
The marketing terms “new and improved” and “longer lasting” are not limited to the latest brand of chewing gum. They...
When certified nursing assistant Julie Seminara injured herself while moving a nursing home patient back in 2001, her problems seemed...
An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical...
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Contact HANDI, NHF's resource center for additional information on bleeding disorders.