Rare Bleeding Disorders

The words “recombinant therapy” and “von Willebrand disease (VWD)” have never occupied the same space. But now they can. In...Read More

Managing bleeds has been a part of life for Judy Ann Pegg-Schunck, RN, 64, since her earliest memory. “When I...Read More

Factor X (FX) deficiency is not the rarest of the rare bleeding disorders, but it’s rare enough. With a worldwide...Read More

For the past 10 years, people with hemophilia and their family members and caregivers have come together for a three-day...Read More

Patients with factor XIII (FXIII) deficiency, the rarest bleeding dis­order—occurring in 1 in 5 million births—have a new treatment option....Read More

The marketing terms “new and improved” and “longer lasting” are not limited to the latest brand of chewing gum. They...Read More

When certified nursing assistant Julie Seminara injured herself while moving a nursing home patient back in 2001, her problems seemed...Read More

An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical...Read More

Read more about the D'Ambrosios in stepmom Cheryl's own words, in our Community Voices section. A hangnail hardly constitutes a...Read More

Read more about this family's experience in the Factor V Deficiency article. Both my stepdaughters were born with severe factor...Read More

Skye Peltier’s life changed on a playground when she was 5 years old. After going down a slide, she lingered...Read More

When Emily Bartko, 4, of Las Vegas, was an infant, bruising came easily. All it took was the pressure from...Read More