The Power of Connection for People with Rare Bleeding Disorders People with rare bleeding disorders face challenges, but increasingly they are facing them together.Read More Rare Bleeding Disorders The Blood Clotting Process What's going on when your blood doesn't clot properly.Read More Hemophilia A&B, Von Willebrand Disease, Rare Bleeding Disorders What Happens in a Joint Bleed It's the most common type of bleed for people with hemophilia.Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease Rare Factor Deficiencies A number of rare bleeding disorders require specialized care.Read More Rare Bleeding Disorders First Recombinant VWD Product, Two Other Drugs Approved FDA approves new drugs for VWD, hemophilia A and HIV-1Read More Rare Bleeding Disorders The X Factor Two women’s experiences with factor X deficiency.Read More Rare Bleeding Disorders Factoring in Factor X Coagadex is the first FX concentrate available.Read More Rare Bleeding Disorders An Educational Experience For the past 10 years, people with hemophilia and their family members and caregivers have come together for a three-day...Read More Hemophilia A&B, Rare Bleeding Disorders Lucky 13 Patients with factor XIII (FXIII) deficiency, the rarest bleeding disorder—occurring in 1 in 5 million births—have a new treatment option...Read More Rare Bleeding Disorders Treatment Breakthroughs The marketing terms “new and improved” and “longer lasting” are not limited to the latest brand of chewing gum. They...Read More Research & Treatment, Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease Inherited Platelet Disorders When certified nursing assistant Julie Seminara injured herself while moving a nursing home patient back in 2001, her problems seemed...Read More Rare Bleeding Disorders ER Form for Bleeding Disorders An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical...Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge Load More
