Research and Treatment

Research & Treatment

Gene Therapy
Since 1966, leading immunologists, clinicians and researchers in gene therapy have been convening every one to three years to discuss...
An Update on Gene Therapy for Hemophilia
After several decades of research, gene therapy for hemophilia is moving closer to becoming a reality. One of the most...
State of science
On two rainy days in May 2018, more than 200 researchers, clinicians, pharmaceutical industry representatives, government officials, and patient advocates...
Judith Graham Pool Postdoctoral Research Fellow Sol Schulman, MD, PhD
For Sol Schulman, MD, PhD, a principal investigator in the Division of Hemostasis and Thrombosis at Beth Israel Deaconess Medical...
Shared decision making
Brandon Downey, 32, a nurse in Chicago with severe hemophilia A, has switched treatments several times over the last decade...
Innovative Investigator Research Award Recipient Tam Perry, PhD
Tam Perry, PhD, is the first nonphysician investigator to receive the National Hemophilia Foundation’s (NHF) Innovative Investigator Research Award. A...
Glenn Pierce, MD, PhD
Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...
Gordon Vehar, PhD, vice president of external innovation at BioMarin Pharmaceutical Inc.
Gordon Vehar was happily headed toward a career as a science teacher when something happened in his senior year of...
Danielle Nance, MD
Danielle Nance was in fifth grade when she decided to become a physician. A bookshelf in her classroom was filled...
Should People with Hemophilia Get the COVID-19 Vaccine?
When the Pfizer-BioNTech and Moderna COVID-19 vaccines became publicly available in December 2020, healthcare professionals around the country called them...
Picture of man outside in athletic gear checking his smartphone.
When you have a bleeding disorder, staying on top of treatment regimens can prevent devastating consequences. Adherence is associated with...
Jordan Shavit, MD, PhD.
Jordan Shavit, MD, PhD, pays forward the support he’s received from NHF.
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Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.