Research & Treatment

Gene Therapy Candidates Face ‘Once in a Lifetime’ Choice

You only get one chance. Cutting-edge gene therapies that show the most promise for a permanent solution to hemophilia rely...

Novel Technologies

The Future of Digital Health

Roshni Kulkarni, M.D., recalls a time when a patient was attacked by a wild turkey and wanted advice about whether...

Novel Technologies

An artist's rendering of a patient speaking with doctors on video chat.

Telehealth for the Bleeding Disorders Community

Remote work, remote learning, remote meetups with friends — Americans have gotten much more comfortable conducting critical (and noncritical) tasks...

Novel Technologies

Gene Therapy and Bleeding Disorders: Where Are We Now, and What’s on the Horizon?

Since 1966, leading immunologists, clinicians and researchers in gene therapy have been convening every one to three years to discuss...

Novel Technologies

An Update on Gene Therapy for Hemophilia

After several decades of research, gene therapy for hemophilia is moving closer to becoming a reality. One of the most...

Novel Technologies

NIH State of the Science: A Look Back and a Way Forward

On two rainy days in May 2018, more than 200 researchers, clinicians, pharmaceutical industry representatives, government officials, and patient advocates...

Researcher Profiles

Judith Graham Pool Postdoctoral Research Fellow Sol Schulman, MD, PhD

For Sol Schulman, MD, PhD, a principal investigator in the Division of Hemostasis and Thrombosis at Beth Israel Deaconess Medical...

Researcher Profiles

Shared Decision-Making for Bleeding Disorders

Brandon Downey, 32, a nurse in Chicago with severe hemophilia A, has switched treatments several times over the last decade...

Novel Technologies

Innovative Investigator Research Award Recipient Tam Perry, PhD

Tam Perry, PhD, is the first nonphysician investigator to receive the National Hemophilia Foundation’s (NHF) Innovative Investigator Research Award. A...

Researcher Profiles, My Journey