Advocacy

Advocacy

Against a backdrop of a possible repeal of the Affordable Care Act (ACA), the National Hemophilia Foundation’s (NHF) Washington Days...Read More
The minimum amount of clotting factor a country requires to avert death in life-threatening instances is 1 international unit (IU)...Read More
Obtaining the federal designation of March as Bleeding Disorders Awareness Month was the cornerstone of the National Hemophilia Foundation’s (NHF’s)...Read More
On May 19, 2016, more than 200 people gathered at Current at Chelsea Piers to celebrate the honorees of the...Read More
Efforts to raise awareness of health conditions have gotten more creative. The Ice Bucket Challenge brought prominence to the condition...Read More
The National Hemophilia Foundation (NHF) has been advocating for the bleeding disorders community and holding advocacy days in Washington, DC,...Read More
“THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as...Read More
I have been the executive director of the Virginia Hemophilia Foundation (VHF) for nearly 10 years. It has been tremendously...Read More
When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician...Read More
Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for...Read More
Nearly 350 members of the bleeding disorders community gathered in Washington, DC, February 24–27, 2015, for NHF’s annual advocacy event,...Read More
The bleeding disorders community is a diverse one: There are parents ­startled by the diagnosis of an unexpected disorder in...Read More
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