Advocacy

A Conversation with Phil Gattone

Phil Gattone was initially drawn to the chronic disease nonprofit space after his son was diagnosed with epilepsy in 1991...

Advocacy

Coverage Denied: The Growing Problem of Formulary Restrictions

For many years, Rodney Dalrymple, of Booneville, Mississippi, has managed his severe hemophilia A with a factor product that he...

Advocacy

Serving Hope and Joy

Teddy Taylor’s parents were both top-tier college athletes, so organizing a sporting event to benefit the National Bleeding Disorders Foundation...

Advocacy

Joey Smiles at the Pennsylvania State Capitol Complex in Harrisburg.

Voices for Change in the Bleeding Disorders Community

Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia...

Advocacy, Community in Action

Careers and Chronic Conditions Such as Bleeding Disorders

Nick McRae-Cyr knew he wouldn’t be going into construction like the rest of his family. Instead of a high-impact occupation...

Advocacy, Community in Action

How Bleeding Disorders Awareness Month Has Impacted the Community

The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special...

NBDF in Action, Advocacy, 75th Anniversary

Ask a Social Worker: How Can I Advocate for My Child with Hemophilia so He Gets the Care He Needs?

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...

Advocacy, Ask a Social Worker

Ask a Social Worker: How Can I Be an Advocate for the Hemophilia Community?

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...

Advocacy, Ask a Social Worker

Bleeding Disorders Advocacy: Infusing the World with Knowledge

Nickie Fernandez remembers the first time he and his family met with their state senator in Salem, Oregon, in 2015...

Advocacy

Picture of a young woman in front of a red background.

NHF Responds to COVID-19

NHF is keeping the bleeding disorders community informed.

NBDF in Action, Advocacy

A piece of art depicting a multicultural group of professional women.

Women with Bleeding Disorders: How to Be Your Own Best Patient Advocate

For years, doctors dismissed Lisa Webb’s heavy bleeding as just something that women in her family had to endure. Despite...

Women's Bleeding Disorders, Advocacy

6 Virtual Fundraising Ideas to Support NHF

While in-person fundraising events and other opportunities to gather face to face to aid the bleeding disorders community are largely...

Community in Action, Advocacy