HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds

Often misdiagnosed, HHT can cause anemia and sometimes organ damage.
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How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.
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Recent Articles

2026 Bleeding Disorders Conference Preview.jpg

2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.

NBDF in Action

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.

Rare Bleeding Disorders

As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too

As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too

It’s good to talk to a provider about your treatment options, even if what you’re doing is working.

Taking Charge, Adults & Aging

Two advocates, pose with an older man in a suit and tie inside a legislative office decorated with flags and framed photos, during a Washington Days advocacy visit.

Fighting for Better Care for Women with Bleeding Disorders

At Washington Days 2026, South Carolina advocate Candi Mitchum helped bring a powerful message to Capitol Hill.

Advocacy

A family of four wearing helmets rides bicycles together on a wooded trail, smiling and enjoying an active outing.

Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

Here’s what you need to know about outdoor activities, treatment routines, and medications when temperatures rise.

Taking Charge, Family Matters

Man lies back in the grass with his hands behind his head, resting with his jacket and backpack beside him.

Letting Go of Guilt: Why Rest Is Part of Living with a Bleeding Disorder

An HTC social worker explains why taking a break is a health need — not something to feel guilty about.

Taking Charge, Ask a Social Worker

DNA

Why Has Gene Therapy for Hemophilia Been Slow to Catch On?

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.

Novel Technologies, Hemophilia A&B

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)