Ask a Social Worker: What Should I Be Doing to Age Well with Hemophilia? Living longer with hemophilia brings new challenges — proactive planning helps protect health, independence, and quality of life. Read More Ask a Social Worker How NBDF Chapters Are Fueling Future Bleeding Disorders Research JGP Fellowships empower researchers to study bleeding disorders and build lasting connections with the community they aim to help. Read More Advocacy How the ‘One Big Beautiful Bill’ Harms the Bleeding Disorders Community Federal reforms threaten Medicaid and ACA coverage, risking access to care for people with bleeding disorders and other chronic conditions. Read More Advocacy Ask a Social Worker: Why You Need an HTC Appointment Before a Factor Refill Learn why hemophilia treatment centers require regular visits before refilling factor for procedures. Read More Ask a Social Worker Ask a Social Worker: How Can People with a Bleeding Disorder Find an Inpatient Substance Use Treatment Program? A coalition can help you get the care you need for substance use disorder or a mental health issue. Read More Ask a Social Worker Houston Couple Helps Fund Research for New Bleeding Disorder Cures Longtime NBDF supporters Kim and Scott Martin are founding donors to the foundation’s venture philanthropy fund. Read More Advocacy Ask a Social Worker: How Can I Stay Active with a Bleeding Disorder Without So Many Limitations? “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker A Conversation with Phil Gattone Phil Gattone was initially drawn to the chronic disease nonprofit space after his son was diagnosed with epilepsy in 1991... Read More Advocacy Ask a Social Worker: How Can I Recognize and Avoid Health Insurance Fraud? “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker Ask a Social Worker: When Insurance Companies No Longer Cover Factor “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker Coverage Denied: The Growing Problem of Formulary Restrictions For many years, Rodney Dalrymple, of Booneville, Mississippi, has managed his severe hemophilia A with a factor product that he... Read More Advocacy FAQ: What You Need to Know About Formularies Understanding these lists of covered drugs can make a difference in the treatment of your chronic condition. Read More Insurance Load More
