A Conversation with Phil Gattone Phil Gattone was initially drawn to the chronic disease nonprofit space after his son was diagnosed with epilepsy in 1991... Read More Advocacy Ask a Social Worker: How Can I Recognize and Avoid Health Insurance Fraud? “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker Ask a Social Worker: When Insurance Companies No Longer Cover Factor “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker Coverage Denied: The Growing Problem of Formulary Restrictions For many years, Rodney Dalrymple, of Booneville, Mississippi, has managed his severe hemophilia A with a factor product that he... Read More Advocacy FAQ: What You Need to Know About Formularies Understanding these lists of covered drugs can make a difference in the treatment of your chronic condition. Read More Insurance Ask a Social Worker: Can Someone with a Bleeding Disorder Join the Military? “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker Serving Hope and Joy Teddy Taylor’s parents were both top-tier college athletes, so organizing a sporting event to benefit the National Bleeding Disorders Foundation... Read More Advocacy Ask a Social Worker: I Feel Like I Have No Control “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker Ask a Social Worker: Advance Care Planning “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker Voices for Change in the Bleeding Disorders Community Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia... Read More Advocacy, Community in Action Gene Therapy for Hemophilia A: What You Need to Know In the summer of 2023, the U.S. Food and Drug Administration (FDA) approved ROCTAVIAN (valoctocogene roxaparvovec-rvox), a gene therapy for... Read More Blood Safety What People with Bleeding Disorders Should Know About Possible Drug Interactions If you or your loved one takes a medication to control a bleeding disorder, you may already know that you... Read More Blood Safety Load More
