Serving Hope and Joy Teddy Taylor’s parents were both top-tier college athletes, so organizing a sporting event to benefit the National Bleeding Disorders Foundation... Read More Advocacy Ask a Social Worker: I Feel Like I Have No Control “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker Ask a Social Worker: Advance Care Planning “Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social... Read More Ask a Social Worker Voices for Change in the Bleeding Disorders Community Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia... Read More Advocacy, Community in Action Gene Therapy for Hemophilia A: What You Need to Know In the summer of 2023, the U.S. Food and Drug Administration (FDA) approved ROCTAVIAN (valoctocogene roxaparvovec-rvox), a gene therapy for... Read More Blood Safety What People with Bleeding Disorders Should Know About Possible Drug Interactions If you or your loved one takes a medication to control a bleeding disorder, you may already know that you... Read More Blood Safety Careers and Chronic Conditions Such as Bleeding Disorders Nick McRae-Cyr knew he wouldn’t be going into construction like the rest of his family. Instead of a high-impact occupation... Read More Advocacy, Community in Action Ask a Social Worker: Dealing with Unauthorized Disclosure Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social... Read More Ask a Social Worker Ask a Social Worker: Finding Support When You Have an Extremely Rare Blood Disorder Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social... Read More Ask a Social Worker Ask a Social Worker: How Can I Heal From Medical Trauma? Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social... Read More Ask a Social Worker What Are PT and aPTT Tests? To diagnose a blood or bleeding disorder, healthcare providers use a variety of tests to identify whether someone’s blood is... Read More Blood Safety Ask a Social Worker: Help for Social Anxiety Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social... Read More Ask a Social Worker Load More
