In-depth profiles and stories about people in the bleeding disorders community. Brian Andrew: Working Toward a Brighter Future Learn how one leader’s unexpected cause has turned into a passion for service. Read More Community in Action Waylon Page: “Kids Can Make a Difference” Diagnosed with a rare bleeding disorder at age 4, Waylon Page has been a powerful advocate and change maker. Read More My Journey World Federation of Hemophilia (WFH) 2026 World Congress Set for Kuala Lumpur The WFH 2026 World Congress on April 19-22 will be the most comprehensive global gathering in the field in 2026. Read More Global Focus Fun, Food, and Fellowship: Retreats for Men with Bleeding Disorders Here’s a snapshot of the activities participants enjoyed at three men’s retreats held at chapters across the country. Read More Chapter Roundup The Bleeds Wouldn’t Stop – But This Patient Didn’t Give Up “I wanted to live my life like there was nothing wrong, but the fear was always there.” Read More Sponsored Content Sami Rappoport’s Labor of Love The actress and filmmaker hopes to make a film about her grandfather, who had hemophilia A and an inhibitor. Read More Community in Action 2025 Bleeding Disorders Conference Awards of Excellence Honorees Meet the 2025 BDC Awards of Excellence honorees recognized and celebrated for their lasting contributions to the bleeding disorders community. Read More NBDF in Action An Up Close Look at What Goes On at a Hemophilia Treatment Center Learn what goes on at a hemophilia treatment center, which offers a unique and holistic approach to bleeding disorders care. Read More Community in Action A Global Victory for People with Hemophilia and VWD Changes to the World Health Organization’s Essential Medicines List represent a major victory for the bleeding disorders community. Read More Global Focus How World Federation of Hemophilia USA Cares for the Global Community WFH USA advances care worldwide through humanitarian aid, training, advocacy, research, and initiatives supporting bleeding disorders communities. Read More Global Focus Efforts to Ban Copay Accumulator Programs: The Power of State Advocacy Chapters are leading efforts to ban harmful copay policies, protecting patients with chronic conditions from high costs and treatment interruptions. Read More Chapter Roundup Lasting Bleeding Disorders Conference Memories Longtime attendees of NBDF’s annual conference share their favorite memories and why BDC means so much to them. Read More NBDF in Action Load More
