Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

If you ask Dawn Rotellini, the work of the National Bleeding Disorders Foundation (NBDF) isn’t done until every person in...
Learn how Regeneron is advancing hemophilia B research fueled by the patient experience.
Learn more about what may be upcoming and shared decision making within an evolving treatment landscape.
You can turn to social media for information on virtually anything, from the private lives of movie stars to makeup...
Here’s an exciting hemophilia truth: science is always advancing in hemophilia care. Today, we’re exploring the science behind how current...
I’ve known that I wanted to be a physician since I was 5 years old. I fell and cut my...
Shared decision-making (SDM) is a process in which a patient and their health care team work together to make decisions...
Each year, hundreds of women, girls, and people with the potential to menstruate (WGPPM) who are affected by bleeding disorders...
When Patrick James Lynch launched BloodStream in 2016, he sought to create something that didn’t yet exist: a podcast featuring...
In February, the National Bleeding Disorders Foundation (NBDF) warmly welcomed Philip Gattone, M.Ed., as its new president and CEO. Gattone...
At every life stage, a blood or bleeding disorder can lead to new questions and concerns. The Steps for Living...
Learn what to expect in a gene therapy clinical trial for hemophilia and what to consider before participating.
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Contact HANDI, NBDF's resource center for additional information on bleeding disorders.