Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...
Welcome to Ask a Social Worker, a new monthly column featuring questions from the community and answers from members of...
Summer camp is a time of freedom, exploration and fun. But for families who have children with bleeding disorders such...
AscellaHealth’s groundbreaking hemophilia management program is designed with patient care at its core.
I was diagnosed with severe hemophilia A at around 8 months old. I had problems from birth, mostly black eyes...
Jonathan Hill’s graphic novel, Blood of the Paladin, opens with the moment he almost died. Traveling alone on business, he...
At uniQure, we know that people with genetic diseases like hemophilia B may have questions about immunity, antibodies, T cells...
In August 2020, the third edition of the World Federation of Hemophilia (WFH) Guidelines for the Management of Hemophilia was...
I always felt different from other kids because of my hemophilia. I endured pain nearly 24/7. While some bleeds came...
COVID-19 has disrupted the lives of everyone, including young adults, who have had to navigate classes and commencements, weddings and...
For women and girls with bleeding disorders, life is often a struggle to be seen and heard by medical professionals...
The end-of-the-year giving season is an ideal time to donate to the National Hemophilia Foundation (NHF) and support its research...
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