Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Growing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the...
myWAPPS provides real-time factor level estimates, based on your pharmacokinetics (PK) profile
Pharmacokinetics (PK) can help you and your doctor determine the right dose and infusion frequency for you.
Orlando Vives has a severe form of hemophilia B and has been able to lead a relatively normal life, thanks...
Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...
The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...
Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...
Explore pharmacokinetics (PK) terms and learn the role of PK in creating a treatment plan that matches your needs.
Welcome to Ask a Social Worker, a new monthly column featuring questions from the community and answers from members of...
Summer camp is a time of freedom, exploration and fun. But for families who have children with bleeding disorders such...
AscellaHealth’s groundbreaking hemophilia management program is designed with patient care at its core.
I was diagnosed with severe hemophilia A at around 8 months old. I had problems from birth, mostly black eyes...
Chat Icon
Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.