Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

L.A. Aguayo
I was diagnosed with severe hemophilia B at birth. I’m the first person in my family to have a bleeding...
Amy Dunn, MD, Is New Chair of MASAC
Amy Dunn, MD, says a patient she diagnosed with hemophilia during her first year of residency changed the course of...
Ask a Social Worker: How Can I Advocate for My Child with Hemophilia so He Gets the Care He Needs?
Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...
A Brief History of Gene Therapy: What It Means and Its Promise for the Hemophilia B Community
Over 10,000 individuals worldwide have been treated with various gene therapy products. Gene therapy is a medical treatment that uses...
The Perils of Pain & The Potential for Progress
Clinical Trial Tests Rofecoxib for Treating Hemophilic Arthropathy
Bleeding Disorders in Pop Culture
Having a rare disease like hemophilia means you don’t often get to see people who share your disease portrayed in...
A New Opportunity to Address Chronic Pain
Clinical Trial Tests Rofecoxib for Treating Hemophilic Arthropathy
Megan Adediran and her children.
Although my great-grandmother lost four sons to post-circumcision bleeding and my grandmother lost nine sons the same way, I’d never...
4 Creative Fundraising Ideas to Support NHF
For organizations such as the National Hemophilia Foundation (NHF), fundraising is a way to raise awareness and much-needed funds for...
Innovative Investigator Research Award Recipient Tam Perry, PhD
Tam Perry, PhD, is the first nonphysician investigator to receive the National Hemophilia Foundation’s (NHF) Innovative Investigator Research Award. A...
Protecting Joint Health: What Motivates You to Get Active?
Sponsored content by Sanofi Genzyme. Healthy joints are important for our health. They allow us to do the things in...
Jason Fulton.
Growing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the...
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