Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Orlando Vives has a severe form of hemophilia B and has been able to lead a relatively normal life, thanks...
Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...
The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...
Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...
Explore pharmacokinetics (PK) terms and learn the role of PK in creating a treatment plan that matches your needs.
Welcome to Ask a Social Worker, a new monthly column featuring questions from the community and answers from members of...
Summer camp is a time of freedom, exploration and fun. But for families who have children with bleeding disorders such...
AscellaHealth’s groundbreaking hemophilia management program is designed with patient care at its core.
I was diagnosed with severe hemophilia A at around 8 months old. I had problems from birth, mostly black eyes...
Jonathan Hill’s graphic novel, Blood of the Paladin, opens with the moment he almost died. Traveling alone on business, he...
At uniQure, we know that people with genetic diseases like hemophilia B may have questions about immunity, antibodies, T cells...
In August 2020, the third edition of the World Federation of Hemophilia (WFH) Guidelines for the Management of Hemophilia was...
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