Community Pulse

Community Pulse

Stay connected with the hemophilia and bleeding disorders community through National Hemophilia Foundation chapters and World Federation of Hemophilia outreach.

 

Quinn hung up his skates at 20 because of his bleeding disorder—but he still made it to the NHL.Read More
A man with severe hemophilia B and his soaring ambition.Read More
These grants are part of NHF’s increased commitment to funding critical bleeding disorders research.Read More
More than 250 attendees stood with National Hemophilia Foundation (NHF) CEO Val D. Bias as he raised a glass to...Read More
In March, bleeding disorders advocates nationwide donned their red ties and raised a record-setting amount of money during the National...Read More
I was diagnosed with von Willebrand disease (VWD) three days after I was born, 25 years ago. A vitamin K...Read More
One of the probably lesser known—and certainly most far-flung—of the 140-plus federally designated US hemophilia treatment centers (HTCs) will soon...Read More
Juniata College is a small liberal arts school in Huntingdon, Pennsylvania, about 125 miles east of Pittsburgh. The college was...Read More
GroupMe. Facebook’s “like” button. Carousell. These are just a few of the innovations that have emerged out of hackathons—collaborative, intensive...Read More
Living with hemophilia with inhibitors is difficult. The inhibitor—a development of antibodies to infused factor product—makes it more difficult to...Read More
On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared...Read More
On March 18, nine athletes laced up their sneakers to run 13.1 miles in Manhattan and help people with bleeding...Read More
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Contact HANDI, NHF's resource center for additional information on bleeding disorders.