Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

The event brings together medical and musculoskeletal (MSK) professionals, bleeding disorders patients, and community advocates.
A valued and beloved member of NBDF for more than 25 years, Neil Frick passed away unexpectedly in 2024.
In 2024, kids and their family members participated in activities inspired by the Olympics, The Amazing Race, and STEM.
As the mother of two sons with hemophilia, Delores Johnson-Huber has learned to be a strong advocate.
Every year at the National Bleeding Disorders Foundation’s (NBDF) annual Bleeding Disorders Conference, NBDF presents Awards of Excellence to those...
If you ask Dawn Rotellini, the work of the National Bleeding Disorders Foundation (NBDF) isn’t done until every person in...
Learn how Regeneron is advancing hemophilia B research fueled by the patient experience.
Learn more about what may be upcoming and shared decision making within an evolving treatment landscape.
You can turn to social media for information on virtually anything, from the private lives of movie stars to makeup...
Here’s an exciting hemophilia truth: science is always advancing in hemophilia care. Today, we’re exploring the science behind how current...
I’ve known that I wanted to be a physician since I was 5 years old. I fell and cut my...
Shared decision-making (SDM) is a process in which a patient and their health care team work together to make decisions...
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Contact The Neil Frick Resource Center (NFRC)