Community Pulse

Community Pulse

Stay connected with the hemophilia and bleeding disorders community through National Hemophilia Foundation chapters and World Federation of Hemophilia outreach.

 

My brother, Sam, and I were born on the same day 23 years ago. I was completely healthy, but he...Read More
In September 2017, the National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC) adopted updated guidelines for the treatment of...Read More
On Wednesday, February 28, people all over the world will celebrate Rare Disease Day. EURORDIS, a nongovernmental alliance of organizations...Read More
How mountaineer Chris Bombardier persevered to become the first person with hemophilia to summit Mount Everest.Read More
The WFH World Bleeding Disorders Registry will advance understanding of hemophilia around the globe.Read More
A Washington, DC, artist and teacher is using his talents to help the bleeding disorders community.Read More
Gala raises funds and honors outstanding individuals.Read More
World Hemophilia Day is an opportunity to raise awareness about various issues faced by the global community. This year, on...Read More
Alan Kennell’s son, Preston, has severe hemophilia A. Every fall, the Kennell family raises money and awareness for bleeding disorders...Read More
In 1990, Ryan White, an 18-year-old with hemophilia, passed away from AIDS. His mother, Jeanne White-Ginder, felt alone in her...Read More
Farro works to raise money and awareness for people with bleeding disorders.Read More
The Kevin Child Scholarship provides $1,000 to a student with hemophilia who is pursuing higher educationRead More
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Contact HANDI, NHF's resource center for additional information on bleeding disorders.