Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

At uniQure, we know that people with genetic diseases like hemophilia B may have questions about immunity, antibodies, T cells...
In August 2020, the third edition of the World Federation of Hemophilia (WFH) Guidelines for the Management of Hemophilia was...
I always felt different from other kids because of my hemophilia. I endured pain nearly 24/7. While some bleeds came...
COVID-19 has disrupted the lives of everyone, including young adults, who have had to navigate classes and commencements, weddings and...
For women and girls with bleeding disorders, life is often a struggle to be seen and heard by medical professionals...
The end-of-the-year giving season is an ideal time to donate to the National Hemophilia Foundation (NHF) and support its research...
You might have read our last few articles where we ask a lot of important questions about gene therapy, such...
In the summer of 2019, while training for the New York City marathon, Nicole Kaes of Brooklyn, New York, woke...
Probably not that often. At uniQure, patients are the focus of all our decisions and discussions, whether those involve clinical...
Scientists today are working hard to understand how innovative technologies...
Multistakeholder summit aims to improve education and communication
NHF is keeping the bleeding disorders community informed.
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Contact HANDI, NHF's resource center for additional information on bleeding disorders.