Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Part three of a three-part series to help you stay informed and feel empowered
Part two of a three-part series to help you stay informed and feel empowered.
Challenge Accepted is a reality TV web series created by Genentech to tackle the unspoken issues of people living with...
Part one of a three-part series to help you stay informed and feel empowered
The National Hemophilia Foundation’s (NHF) 74th Annual Bleeding Disorders Conference (BDC) will take place August 25-27, 2022. After two years...
Gene therapy aims to address the root cause of hemophilia B and help people produce stable and protective levels of...
What exactly is a gene? What happens when genes mutate? And can gene therapy research help solve problems related to...
Ronia Cole, 52, of Redford Township, Michigan, has lived with a bleeding disorder since she was a toddler. “I’d take...
I was diagnosed with severe hemophilia B at birth. I’m the first person in my family to have a bleeding...
Amy Dunn, MD, says a patient she diagnosed with hemophilia during her first year of residency changed the course of...
Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...
Over 10,000 individuals worldwide have been treated with various gene therapy products. Gene therapy is a medical treatment that uses...
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Contact HANDI, NHF's resource center for additional information on bleeding disorders.