Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

Having a rare disease like hemophilia means you don’t often get to see people who share your disease portrayed in...
Although my great-grandmother lost four sons to post-circumcision bleeding and my grandmother lost nine sons the same way, I’d never...
For organizations such as the National Hemophilia Foundation (NHF), fundraising is a way to raise awareness and much-needed funds for...
Tam Perry, PhD, is the first nonphysician investigator to receive the National Hemophilia Foundation’s (NHF) Innovative Investigator Research Award. A...
Sponsored content by Sanofi Genzyme. Healthy joints are important for our health. They allow us to do the things in...
Growing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the...
myWAPPS provides real-time factor level estimates, based on your pharmacokinetics (PK) profile
Pharmacokinetics (PK) can help you and your doctor determine the right dose and infusion frequency for you.
Orlando Vives has a severe form of hemophilia B and has been able to lead a relatively normal life, thanks...
Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...
The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...
Advances in treatment have made it possible for people with hemophilia to lead relatively normal lives, but Glenn Pierce has...
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