Community Pulse

Community Pulse

Stay connected with the hemophilia and bleeding disorders community through National Hemophilia Foundation chapters and World Federation of Hemophilia outreach.

 

I was diagnosed with von Willebrand disease (VWD) three days after I was born, 25 years ago. A vitamin K...Read More
One of the probably lesser known—and certainly most far-flung—of the 140-plus federally designated US hemophilia treatment centers (HTCs) will soon...Read More
Juniata College is a small liberal arts school in Huntingdon, Pennsylvania, about 125 miles east of Pittsburgh. The college was...Read More
GroupMe. Facebook’s “like” button. Carousell. These are just a few of the innovations that have emerged out of hackathons—collaborative, intensive...Read More
Living with hemophilia with inhibitors is difficult. The inhibitor—a development of antibodies to infused factor product—makes it more difficult to...Read More
On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared...Read More
On March 18, nine athletes laced up their sneakers to run 13.1 miles in Manhattan and help people with bleeding...Read More
Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not...Read More
“The threat to the life of just one hemophiliac would be sufficient reason for us to travel to this meeting....Read More
Amelia Mickeliunas Lemonade stand fundraiser, Omaha, Nebraska In 2016, when Jenny and Joe Mickeliunas’ newborn son, Elliott, was diagnosed with...Read More
My brother, Sam, and I were born on the same day 23 years ago. I was completely healthy, but he...Read More
In September 2017, the National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC) adopted updated guidelines for the treatment of...Read More
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Contact HANDI, NHF's resource center for additional information on bleeding disorders.