HemAware

Featured On HemAware

Period Tracking Apps and Privacy: What Women with Bleeding Disorders Should Know

Menstruation tracking is a valuable tool. Experts say to be vigilant in what information you share.
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Acquired Hemophilia: When Unexpected Bleeding Appears Later in Life

The rare condition usually affects people in their 70s and 80s without warning. Here’s what you need to know.
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Acquired Hemophilia: When Unexpected Bleeding Appears Later in Life
Ask a Social Worker: “I’m 17 with VWD, and my periods are awful. What can I do if my doctor suggests birth control, but my mom doesn’t want me to take it?”

Heavy periods with a bleeding disorder are common, and there are safe, private options to help teens manage them.
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Recent Articles

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control...

Hemophilia A&B, Novel Technologies

Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.

Von Willebrand Disease

The Bleeds Wouldn’t Stop – But This Patient Didn’t Give Up

“I wanted to live my life like there was nothing wrong, but the fear was always there.”

Decoding the Genetics of Hemophilia

Assessing the My Life, Our Future Genotyping Project A recent article in the journal Haemophilia analyzed the My Life, Our...

Novel Technologies

Sen. Cory Booker with a bleeding disorders advocate

4 Ways to Become a Bleeding Disorders Community Advocate

You advocate for your kid—now take it to the next level.

Advocacy

Six Things to Think About When Choosing a Nonprofit to Support

6 Things to Think About When Choosing a Nonprofit to Support

Every year, thousands of nonprofits ask for donations. But how can you choose which one to give to?

Advocacy

A satellite photo of Hurricane Harvey in the Gulf of Mexico in 2017.

Are You Ready if a Natural Disaster Strikes?

Hurricanes, wildfires and more test the bleeding disorders community’s preparation for emergencies.

Community in Action

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC