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Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds

Often misdiagnosed, HHT can cause anemia and sometimes organ damage.
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Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds
How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.
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How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Recent Articles

2026 Bleeding Disorders Conference Preview.jpg

2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.

NBDF in Action

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.

Rare Bleeding Disorders

As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too

As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too

It’s good to talk to a provider about your treatment options, even if what you’re doing is working.

Taking Charge, Adults & Aging

Advocacy

How the ‘One Big Beautiful Bill’ Harms the Bleeding Disorders Community

Federal reforms threaten Medicaid and ACA coverage, risking access to care for people with bleeding disorders and other chronic conditions.

Advocacy

dont skip HTC visits

Ask a Social Worker: Why You Need an HTC Appointment Before a Factor Refill

Learn why hemophilia treatment centers require regular visits before refilling factor for procedures.

Ask a Social Worker

Advice for First-Time Summer Campers

Advice for Parents Sending a Child with a Bleeding Disorder to Camp for the First Time

Tips for parents on how to prepare their child with a bleeding disorder for their first sleepaway camp experience.

Family Matters

Three Tips on How to Open Up to Your Comprehensive Care Team

Three Tips on How to Open Up to Your Comprehensive Care Team

Being open and honest with providers can be good for your health. Here are tips to help you do that.

Taking Charge, Adults & Aging

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)