HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.
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2026 Bleeding Disorders Conference Preview
Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.
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Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

Recent Articles

NBDF’s President and CEO on the State of the Bleeding Disorders Community

Phil Gattone, NBDF’s president and CEO, reflects on passion, organizational growth, and the future of bleeding disorders care.

NBDF in Action

Two advocates, pose with an older man in a suit and tie inside a legislative office decorated with flags and framed photos, during a Washington Days advocacy visit.

Fighting for Better Care for Women with Bleeding Disorders

At Washington Days 2026, South Carolina advocate Candi Mitchum helped bring a powerful message to Capitol Hill.

Advocacy

A family of four wearing helmets rides bicycles together on a wooded trail, smiling and enjoying an active outing.

Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

Here’s what you need to know about outdoor activities, treatment routines, and medications when temperatures rise.

Taking Charge, Family Matters

Find Meaning Through Volunteering

Many Americans, including many retirees, spend significant hours volunteering. According to the Corporation for National and Community Service (CNCS), a...

Adults & Aging

Making It Work

Whether you are in the midst of your career or just starting the job hunt, young adults with bleeding disorders...

Generation Next

Rare Finds

They’re the rarest of the rare: bleeding disorders like platelet storage pool disorder and factor XIII deficiency that affect only...

Community in Action

Taking a Peek at Pharmacokinetic (PK) Studies

Prophylaxis, a treatment regimen of regular factor infusions, ideally prevents bleeding in the average person with a moderate/severe bleeding disorder...

Taking Charge

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC

HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Recent Articles