HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?

Learn why using your HTC’s pharmacy program can benefit you and your family.
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What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds

Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

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How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

From left to right: Natalie and Samuel, Tara and Jack, Allison & Emilio

See How They Solved Their Preteens’ Biggest Treatment Challenges

You’re no stranger to drama: Adapting to changing needs, schedules, and even personalities is part of being a caregiver to...

Rare Finds

They’re the rarest of the rare: bleeding disorders like platelet storage pool disorder and factor XIII deficiency that affect only...

Community in Action

Taking a Peek at Pharmacokinetic (PK) Studies

Prophylaxis, a treatment regimen of regular factor infusions, ideally prevents bleeding in the average person with a moderate/severe bleeding disorder...

Taking Charge

Doctor looking out from behind lab shelving

Above and Beyond

“THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as...

Advocacy

Safe Arthritis Supplements

Some people swear by supplements to ease the ache of their arthritic joints. Be sure yours are safe and effective...

Taking Charge

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

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HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Recent Articles