HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.
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2026 Bleeding Disorders Conference Preview
Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.
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Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

Recent Articles

NBDF’s President and CEO on the State of the Bleeding Disorders Community

Phil Gattone, NBDF’s president and CEO, reflects on passion, organizational growth, and the future of bleeding disorders care.

NBDF in Action

Two advocates, pose with an older man in a suit and tie inside a legislative office decorated with flags and framed photos, during a Washington Days advocacy visit.

Fighting for Better Care for Women with Bleeding Disorders

At Washington Days 2026, South Carolina advocate Candi Mitchum helped bring a powerful message to Capitol Hill.

Advocacy

A family of four wearing helmets rides bicycles together on a wooded trail, smiling and enjoying an active outing.

Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

Here’s what you need to know about outdoor activities, treatment routines, and medications when temperatures rise.

Taking Charge, Family Matters

Soothing Sunburns

Summer fun often means boating on the lake, swimming at the seashore and playing sports outdoors. But even the most...

Taking Charge

Kids, Lighten Your Load

Although snails carry their houses on their backs, children shouldn’t. These days, backpacks serve as a catch-all for school supplies...

Family Matters

Research and Education Work Together

Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for...

Advocacy

NHF-Baxter Clinical Fellow Profile: Jordan A. Shavit, MD, PhD

Accomplished pediatric researcher advances study of pediatric bleeding disorders. HemAware is conducting a series of interviews with recipients of the...

My Journey

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

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HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Recent Articles