HemAware

Featured On HemAware

A Global Victory for People with Hemophilia and VWD

Changes to the World Health Organization’s Essential Medicines List represent a major victory for the bleeding disorders community.
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A Global Victory for People with Hemophilia and VWD
How to Balance Household Responsibilities

A child’s bleeding disorder can strain families. Sharing responsibilities, communicating clearly, and seeking support can help couples stay strong and resilient.
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Meet Two Trusted Bleeding Disorders Influencers on TikTok

Meet two women using TikTok to inspire and help others in the bleeding disorders community.
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Recent Articles

How to Build Resiliency in the Face of Chronic Pain

3 Ways to Build Resilience in the Face of Chronic Pain

Persistent pain may be a part of life when you have a bleeding disorder. Try these strategies to cope.

Taking Charge

Managing Joint Pain as You Age

Managing Joint Pain as You Age

Joint pain can be a common complaint among older people with bleeding disorders, but exercise and physical therapy help.

Family Matters

How World Federation of Hemophilia USA Cares for the Global Community

How World Federation of Hemophilia USA Cares for the Global Community

WFH USA advances care worldwide through humanitarian aid, training, advocacy, research, and initiatives supporting bleeding disorders communities.

Global Focus

Belly button piercing

Body Piercings and Bleeding Disorders

Editor's Note: This is part 1 of a two-part series focusing on body art. Check out part 2 on tattoos...

Family Matters

NHF-Shire Clinical Fellow Profile: Neil Goldenberg, MD

This interview was conducted with Neil Goldenberg, MD, PhD, director of research at Johns Hopkins-All Children’s Hospital in St. Petersburg...

Researcher Profiles

Progress Made for My Life, Our Future Genotyping Initiative

Progress Made for My Life, Our Future Genotyping Initiative

Five pilot sites have been approved and first patients enrolled

Novel Technologies

Nonprofit founder spreads the arts within the community

Bringing the Arts to the Hospital

In each issue of HemAware , we “Take 5” with people in the bleeding disorders community and spotlight their efforts...

My Journey

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)