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Featured On HemAware

How to Choose the Right Hemophilia Treatment Options for You

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best.
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How to Choose the Right Hemophilia Treatment Options for You
Heavy Periods, No Answers: My Path to a von Willebrand Disease Diagnosis

It took years for Julie Schiffmacher to be diagnosed with von Willebrand disease. Now she’s turning that experience into advocacy.
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Von Willebrand Disease vs. Hemophilia: Key Differences in Symptoms, Causes, and Treatment

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know.
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Understanding more about your period can help you have greater control over your health, especially when managing a bleeding disorder.

Menstruation tracking is a valuable tool. Experts say to be vigilant in what information you share.

Women's Bleeding Disorders, Taking Charge

The rare condition usually affects people in their 70s and 80s without warning. Here’s what you need to know.

Adults & Aging, Rare Bleeding Disorders

The appearance of HIV/ AIDS in the bleeding disorders community was the defining moment in the life of W. Keith...

Community in Action, Researcher Profiles

Getting fit should shrink your waist, not your wallet. Commercial gyms and fancy equipment are fine if you can afford...

A child and his mother travel for a week by bus in Peru to visit a treatment center. A young...

Global Focus

“Missense” and “nonsense” make sense at the molecular level. These are genetic mutations that cause hemophilia. Knowing your genotype, or...

Hemophilia A&B, Carriers

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)