HemAware

Featured On HemAware

NBDF’s President and CEO on the State of the Bleeding Disorders Community

Phil Gattone, NBDF’s president and CEO, reflects on passion, organizational growth, and the future of bleeding disorders care.
Read More
Fighting for Better Care for Women with Bleeding Disorders

At Washington Days 2026, South Carolina advocate Candi Mitchum helped bring a powerful message to Capitol Hill.
Read More
Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

Here’s what you need to know about outdoor activities, treatment routines, and medications when temperatures rise.
Read More

Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

An HTC social worker explains why taking a break is a health need — not something to feel guilty about.

Taking Charge, Ask a Social Worker

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.

Novel Technologies, Hemophilia A&B

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.

Women's Bleeding Disorders, Novel Technologies, Alternative Treatments

People in the bleeding disorders community are no strangers to blood tests. They give blood samples routinely at comprehensive treatment...

Hemophilia A&B, Von Willebrand Disease, Blood Safety

Rachel Miller, 21, who has von Willebrand disease, attended two years of community college and lived at home before enrolling...

Generation Next, Family Matters

Renee Embry has a platelet dysfunction and Ehlers-Danlos syndrome, but that doesn’t stop her from getting out on the water.

In January 2008, the US Food and Drug Administration (FDA) approved changes to the label of the Ortho Evra ®...

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)