HemAware

Featured On HemAware

NBDF’s President and CEO on the State of the Bleeding Disorders Community

Phil Gattone, NBDF’s president and CEO, reflects on passion, organizational growth, and the future of bleeding disorders care.
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Fighting for Better Care for Women with Bleeding Disorders

At Washington Days 2026, South Carolina advocate Candi Mitchum helped bring a powerful message to Capitol Hill.
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Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

Here’s what you need to know about outdoor activities, treatment routines, and medications when temperatures rise.
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Summer Heat and Bleeding Disorders: Staying Safe During an Active Season

An HTC social worker explains why taking a break is a health need — not something to feel guilty about.

Taking Charge, Ask a Social Worker

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.

Novel Technologies, Hemophilia A&B

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.

Women's Bleeding Disorders, Novel Technologies, Alternative Treatments

Changing a baby’s diaper is a routine task. Unless your baby is a boy with an undiagnosed bleeding disorder who...

Many parents of children with severe hemophilia rely on a formula that works most of the time: prophylaxis + other...

Hemophilia A&B

Here’s a medical pop quiz. The fibers that make up blood clots are stretchy like: A. Play dough B. Plastic...

Hemophilia A&B

Adherence to drug therapy is critical to anyone with a chronic condition, but especially for people with bleeding disorders who...

HIV

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)