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In the summer of 2023, the U.S. Food and Drug Administration (FDA) approved ROCTAVIAN (valoctocogene roxaparvovec-rvox), a gene therapy for...
The National Bleeding Disorders Foundation (NBDF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this...
When you have a rare disorder, it can be isolating. Gabi Flores, 22, knows that feeling all too well, as...
Self-infusion sounds innocuous enough until you consider the reality: using a hypodermic syringe to inject clotting factor concentrates directly into...

NHF’s 75th Anniversary

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