Global health education company Jumo Health is releasing four new comic books that provide contextual and entertaining information for children, teenagers and families managing hemophilia.
The books, created in collaboration with the National Hemophilia Foundation (NHF), break down topics including what clotting factors are and how to successfully manage hemophilia on a daily basis. The books are evidence-based and peer-reviewed by leading physician specialists and based on real patient stories to ensure authenticity.
“At NHF, we recognize the need for people with bleeding disorders to be educated about their condition in age-appropriate ways. These books demystify the science behind bleeding disorders while acknowledging the emotional component of living with a chronic illness,” says Kate Nammacher, senior director of education at NHF.
“For decades, we’ve watched as statistics surrounding reading comprehension, health literacy and medication compliance remain fundamentally unchanged,” says Kevin Aniskovich, president and CEO of Jumo Health. “With only 20% of patients receiving information when initially diagnosed, it’s no surprise that many patients don’t have the tools to succeed. We are delighted to work with NHF to reverse this trend and to ensure these resources get into the hands of patients, caregivers and healthcare professionals.”
Jason Rogers, whose son Ben and the rest of his family are featured in Understanding Hemophilia for Families, echoes the importance of having age-appropriate resources like these. “Sharing through an easy read—like a comic book—is perfect; it ties a real story into what would otherwise be a complicated disorder to understand. We are honored to have been asked to share our story and Ben’s walk with hemophilia.”
Families can email NHF’s HANDI to request copies. The books are also available for purchase online at the Jumo Health store.