Community-Pulse | HemAware

Washington Days Has Volunteers Seeing Red

The scene at Washington Days, the National Hemophilia Foundation’s (NHF) annual advocacy event, is characterized by a sense of excitement...

On a rainy Saturday in January, 26 people arrived at Valley Children’s Hospital (VCH) in Madera, CA, for one reason...

Hosted by the National Hemophilia Federation (NHF), the upcoming World Federation of Hemophilia (WFH) 2016 World Congress is expected to...

Global Focus

They’re the rarest of the rare: bleeding disorders like platelet storage pool disorder and factor XIII deficiency that affect only...

In each issue of HemAware , we spotlight people in the bleeding disorders community. Here, we talk with Justin McClanahan...

My Journey

When the World Federation of Hemophilia (WFH) announced that a donation of 500 million units of factor had been made...

Global Focus

The bleeding disorders community is a diverse one: There are parents startled by the diagnosis of an unexpected disorder in...

Advocacy

When Dawn Rotellini started the Rocky Mountain Hemophilia and Bleeding Disorders Association in Bozeman, Montana, 15 years ago to serve...

Chapter Roundup, Advocacy

The National Hemophilia Foundation proudly announces that HemAware, the magazine of the bleeding disorders community, is now available in a...

Worldwide, an estimated 1 in 1,000 people have a bleeding disorder. But 75% receive either inadequate treatment or no treatment...

Global Focus, Global Focus

In each issue of HemAware , we “Take 5” with people in the bleeding disorders community and spotlight their efforts...

Community Pulse, My Journey

The National Hemophilia Foundation’s (NHF’s) Annual Meeting provides an opportunity for people with bleeding disorders and their families to come...

NBDF in Action