Advocacy Depends on You The National Hemophilia Foundation (NHF) has been advocating for the bleeding disorders community and holding advocacy days in Washington, DC...Read More Advocacy Above and Beyond “THINK BETTER. THINK BIGGER. THINK BEYOND.”These are the themes Steven W. Pipe, MD, laid out in summer 2015 as part...Read More Advocacy Support for Local Chapters I have been the executive director of the Virginia Hemophilia Foundation (VHF) for nearly 10 years. It has been tremendously...Read More Advocacy Blood Donor Deferral Policy The National Hemophilia Foundation (NHF) commends the US Food and Drug Administration (FDA) for initiating development of a national blood...Read More Blood Safety Information for All Providers When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician...Read More Advocacy Research and Education Work Together Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for...Read More Advocacy Advocating for Change Nearly 350 members of the bleeding disorders community gathered in Washington, DC, February 24–27, 2015, for NHF’s annual advocacy event...Read More Advocacy Annual Meeting Highlights The bleeding disorders community is a diverse one: There are parents startled by the diagnosis of an unexpected disorder in...Read More Advocacy Comedic Fundraising What do a TV star, a juggler and a mock candidate for president of the United States have in common...Read More Advocacy #HemoChat History Social media has long been lauded for its ability to connect people with common interests, regardless of their location. When...Read More Advocacy Mobile Health for Hemophilia Kyle Brown is fortunate that his hemophilia treatment center (HTC) kept ordering his medications. Ideally, his prophylaxis supply should have...Read More Generation Next, Adults & Aging, Fighting for You Ryan White’s Passion It was December 1984, and Ryan White was a middle school student in Kokomo, Indiana. He’d just learned during hemophilia...Read More Generation Next, Advocacy Load More
