NHF’s Washington Days Advocacy Event Mobilizes on Healthcare Against a backdrop of a possible repeal of the Affordable Care Act (ACA), the National Hemophilia Foundation’s (NHF) Washington Days...Read More Advocacy Highlights of the WFH Humanitarian Aid Program The minimum amount of clotting factor a country requires to avert death in life-threatening instances is 1 international unit (IU)...Read More Advocacy Minding Your Medicaid More than a quarter of the bleeding disorders population in the US relies on Medicaid to pay health expenses. Changes...Read More Insurance March Is Now Bleeding Disorders Awareness Month Obtaining the federal designation of March as Bleeding Disorders Awareness Month was the cornerstone of the National Hemophilia Foundation’s (NHF’s)...Read More Advocacy 2016 Spring Soiree On May 19, 2016, more than 200 people gathered at Current at Chelsea Piers to celebrate the honorees of the...Read More Advocacy Seeing Red Efforts to raise awareness of health conditions have gotten more creative. The Ice Bucket Challenge brought prominence to the condition...Read More Advocacy Advocacy Depends on You The National Hemophilia Foundation (NHF) has been advocating for the bleeding disorders community and holding advocacy days in Washington, DC...Read More Advocacy Above and Beyond “THINK BETTER. THINK BIGGER. THINK BEYOND.”These are the themes Steven W. Pipe, MD, laid out in summer 2015 as part...Read More Advocacy Support for Local Chapters I have been the executive director of the Virginia Hemophilia Foundation (VHF) for nearly 10 years. It has been tremendously...Read More Advocacy Blood Donor Deferral Policy The National Hemophilia Foundation (NHF) commends the US Food and Drug Administration (FDA) for initiating development of a national blood...Read More Blood Safety Information for All Providers When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician...Read More Advocacy Research and Education Work Together Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for...Read More Advocacy Load More
