HemAware

Featured On HemAware

Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds

Often misdiagnosed, HHT can cause anemia and sometimes organ damage.
Read More

Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds
How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.
Read More
How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

Women and girls clinics are closing gaps with coordinated bleeding disorders care that spans every stage of life.
Read More

How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

Recent Articles

2026 Bleeding Disorders Conference Preview.jpg

2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.

NBDF in Action

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.

Rare Bleeding Disorders

As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too

As Life Changes, Your Bleeding Disorder Treatment May Need to Change, Too

It’s good to talk to a provider about your treatment options, even if what you’re doing is working.

Taking Charge, Adults & Aging

Head bleed

Head Bleeds and Hemophilia

Hogan Lust started walking last month. He’s two and a half years old. For the tow-headed toddler from Tucson, that...

Hemophilia A&B

Factor XIII Deficiency

Factor XIII Deficiency One of Rarest Bleeding Disorders

Update, January 2014: On December 23, 2013, the FDA approved Tretten, Coagulation Factor XIII A-Subunit (Recombinant), which is the first...

Rare Bleeding Disorders

Factor XI Deficiency

Factor XI Deficiency Facts

Blame it on the Girl Scout cookie. That’s what Josh Beck, 27, of Franklin, Wisconsin, was eating when he was...

Rare Bleeding Disorders

Hemophilia and sports

Study: High-Impact Activity Doesn't Increase Joint Bleeds

“PF Flyers make you run faster and jump higher,” boasted an old advertisement for Keds ® sneakers. Turns out those...

Hemophilia A&B, Fitness & Nutrition

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)