In-depth profiles and stories about people in the bleeding disorders community. What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders? Learn why using your HTC’s pharmacy program can benefit you and your family. Read More Community in Action From Racing to Recovery and Beyond: An Elite Cyclist’s Journey with Hemophilia From elite cyclist to engineer, Zack Stein has never let hemophilia hinder his dreams. Neither has his father, Scott. Read More My Journey 2026 Bleeding Disorders Conference Preview Here’s a sampling of the sessions you can look forward to at BDC. Read More NBDF in Action NBDF’s President and CEO on the State of the Bleeding Disorders Community Phil Gattone, NBDF’s president and CEO, reflects on passion, organizational growth, and the future of bleeding disorders care. Read More NBDF in Action Heavy Periods, No Answers: My Path to a von Willebrand Disease Diagnosis It took years for Julie Schiffmacher to be diagnosed with von Willebrand disease. Now she’s turning that experience into advocacy. Read More My Journey Brian Andrew: Working Toward a Brighter Future Learn how one leader’s unexpected cause has turned into a passion for service. Read More Community in Action Waylon Page: “Kids Can Make a Difference” Diagnosed with a rare bleeding disorder at age 4, Waylon Page has been a powerful advocate and change maker. Read More My Journey World Federation of Hemophilia (WFH) 2026 World Congress Set for Kuala Lumpur The WFH 2026 World Congress on April 19-22 will be the most comprehensive global gathering in the field in 2026. Read More Global Focus Fun, Food, and Fellowship: Retreats for Men with Bleeding Disorders Here’s a snapshot of the activities participants enjoyed at three men’s retreats held at chapters across the country. Read More Chapter Roundup The Bleeds Wouldn’t Stop – But This Patient Didn’t Give Up “I wanted to live my life like there was nothing wrong, but the fear was always there.” Read More Sponsored Content Sami Rappoport’s Labor of Love The actress and filmmaker hopes to make a film about her grandfather, who had hemophilia A and an inhibitor. Read More Community in Action 2025 Bleeding Disorders Conference Awards of Excellence Honorees Meet the 2025 BDC Awards of Excellence honorees recognized and celebrated for their lasting contributions to the bleeding disorders community. Read More NBDF in Action Load More
