My Journey

Raising Sons with Bleeding Disorders: An Advocacy Journey

As the mother of two sons with hemophilia, Delores Johnson-Huber has learned to be a strong advocate.

My Journey

Chancellor Donald, M.D.: Advocacy and Equity Are My Passion

I’ve known that I wanted to be a physician since I was 5 years old. I fell and cut my...

My Journey

Riding High with Hemophilia

When I was an infant, I developed purple and pink bruises all over my body. My parents carried me from...

My Journey

Community Health Is in Dr. Judith Baker’s Blood

I came of age in the 1970s, when there was an explosion in the women’s health movement. I got involved...

My Journey

Training for Life: How Bodybuilding Became My Purpose

I was diagnosed with severe hemophilia B at birth. I’m the first person in my family to have a bleeding...

My Journey

A Brighter Future for the Bleeding Disorders Community in Nigeria

Although my great-grandmother lost four sons to post-circumcision bleeding and my grandmother lost nine sons the same way, I’d never...

My Journey

Innovative Investigator Research Award Recipient Tam Perry, PhD

Tam Perry, PhD, is the first nonphysician investigator to receive the National Hemophilia Foundation’s (NHF) Innovative Investigator Research Award. A...

Researcher Profiles, My Journey

Honoring the Life of a Remarkable Young Man with Hemophilia

Growing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the...

My Journey

Three members of the bleeding disorders community.

Living with Bleeding Disorders in the Time of COVID

The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...

Family Matters, My Journey, Community in Action

Jim Christensen: “Hemophilia Directed My Path”

I was diagnosed with severe hemophilia A at around 8 months old. I had problems from birth, mostly black eyes...

My Journey

A Novel Experience: Living Life with Hemophilia A

Jonathan Hill’s graphic novel, Blood of the Paladin, opens with the moment he almost died. Traveling alone on business, he...

My Journey, My Journey

Bleeding Disorders and Mental Health: Let It Out

I always felt different from other kids because of my hemophilia. I endured pain nearly 24/7. While some bleeds came...

My Journey