Community in Action

Sami Rappoport’s Labor of Love

The actress and filmmaker hopes to make a film about her grandfather, who had hemophilia A and an inhibitor.

An Up Close Look at What Goes on at a Hemophilia Treatment Center

Learn what goes on at a hemophilia treatment center, which offers a unique and holistic approach to bleeding disorders care.

Community in Action

Decoding Medical Research for the ’Gram

You can turn to social media for information on virtually anything, from the private lives of movie stars to makeup...

Community in Action

A Conversation with the BloodStream Podcast Co-Hosts

When Patrick James Lynch launched BloodStream in 2016, he sought to create something that didn’t yet exist: a podcast featuring...

Community in Action

Introducing the Newly Updated Steps for Living Website

At every life stage, a blood or bleeding disorder can lead to new questions and concerns. The Steps for Living...

Community in Action

Joey Smiles at the Pennsylvania State Capitol Complex in Harrisburg.

Voices for Change in the Bleeding Disorders Community

Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia...

Advocacy, Community in Action

Careers and Chronic Conditions Such as Bleeding Disorders

Nick McRae-Cyr knew he wouldn’t be going into construction like the rest of his family. Instead of a high-impact occupation...

Advocacy, Community in Action

The Power of Summer Camps for Kids with Bleeding Disorders

The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special...

75th Anniversary, Community in Action

Black Women with Bleeding Disorders Are Striving to Be Seen and Heard

Ronia Cole, 52, of Redford Township, Michigan, has lived with a bleeding disorder since she was a toddler. “I’d take...

Community in Action

Ask a Social Worker: How Can I Advocate for My Child with Hemophilia so He Gets the Care He Needs?

Ask a Social Worker: What’s the Latest on the Stimate Nasal Spray Recall?

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...

Community in Action, Ask a Social Worker

Bleeding Disorders in Pop Culture

Having a rare disease like hemophilia means you don’t often get to see people who share your disease portrayed in...

Community in Action

4 Creative Fundraising Ideas to Support NHF

For organizations such as the National Hemophilia Foundation (NHF), fundraising is a way to raise awareness and much-needed funds for...

Community in Action