Advocacy

HemAware has everything you need to know about inheritable blood and bleeding disorders. Together, we fight for access to healthcare. Read now to learn more.

Serving Hope and Joy

Teddy Taylor’s parents were both top-tier college athletes, so organizing a sporting event to benefit the National Bleeding Disorders Foundation...

Advocacy

Joey Smiles at the Pennsylvania State Capitol Complex in Harrisburg.

Voices for Change in the Bleeding Disorders Community

Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia...

Advocacy, Community in Action

Careers and Chronic Conditions Such as Bleeding Disorders

Nick McRae-Cyr knew he wouldn’t be going into construction like the rest of his family. Instead of a high-impact occupation...

Advocacy, Community in Action

How Bleeding Disorders Awareness Month Has Impacted the Community

The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special...

NHF in Action, Advocacy, 75th Anniversary

Ask a Social Worker: How Can I Advocate for My Child with Hemophilia so He Gets the Care He Needs?

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...

Advocacy, Ask a Social Worker

Ask a Social Worker: How Can I Be an Advocate for the Hemophilia Community?

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...

Advocacy, Ask a Social Worker

Bleeding Disorders Advocacy: Infusing the World with Knowledge

Nickie Fernandez remembers the first time he and his family met with their state senator in Salem, Oregon, in 2015...

Advocacy

Picture of a young woman in front of a red background.

NHF Responds to COVID-19

NHF is keeping the bleeding disorders community informed.

NHF in Action, Advocacy

A piece of art depicting a multicultural group of professional women.

Women with Bleeding Disorders: How to Be Your Own Best Patient Advocate

For years, doctors dismissed Lisa Webb’s heavy bleeding as just something that women in her family had to endure. Despite...

Women's Bleeding Disorders, Advocacy

6 Virtual Fundraising Ideas to Support NHF

While in-person fundraising events and other opportunities to gather face to face to aid the bleeding disorders community are largely...

Community in Action, Advocacy

Are You Ready for Washington Days 2020?

On February 26-28, bleeding disorders advocates from around the country will convene in Washington, DC, for the National Hemophilia Foundation’s...

Advocacy

Community Heroes: NHF CEO Val D. Bias

When Val D. Bias became chief executive officer of the National Hemophilia Foundation (NHF) in 2008, he wasn’t just the...

Community in Action, Advocacy