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WFH 2025 Comprehensive Care Summit Brings Global Experts to Dubai

The event brings together medical and musculoskeletal (MSK) professionals, bleeding disorders patients, and community advocates.
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WFH 2025 Comprehensive Care Summit Brings Global Experts to Dubai
In Memory of Neil Frick: Honoring His Dedication to the Bleeding Disorders Community

A valued and beloved member of NBDF for more than 25 years, Neil Frick passed away unexpectedly in 2024.
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Camps Mean Summer Fun for Everyone

In 2024, kids and their family members participated in activities inspired by the Olympics, The Amazing Race, and STEM.
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Camps Mean Summer Fun for Everyone

Longtime NBDF supporters Kim and Scott Martin are founding donors to the foundation’s venture philanthropy fund.

Advocacy

As the mother of two sons with hemophilia, Delores Johnson-Huber has learned to be a strong advocate.

My Journey

Learn how Regeneron is advancing hemophilia B research fueled by the patient experience.

“Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social...

Nikki Angeles, 32, of Coram, New York, was 16 when she was finally diagnosed with von Willebrand disease (VWD). That...

Winter is the peak season for sneezin’ — and congestion, coughing, and achiness that often come with colds and flu...

Taking Charge

Shanthi Hegde doesn’t like to be uninformed. The biology major at Northeastern University in Boston who plans to be a...

Generation Next

Contact The Neil Frick Resource Center (NFRC)