HemAware

Featured On HemAware

Why Has Gene Therapy for Hemophilia Been Slow to Catch On?

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.
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OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.
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How to Choose the Right Hemophilia Treatment Options for You

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best.
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How to Choose the Right Hemophilia Treatment Options for You

Recent Articles

Heavy Periods, No Answers: My Path to a von Willebrand Disease Diagnosis

It took years for Julie Schiffmacher to be diagnosed with von Willebrand disease. Now she’s turning that experience into advocacy.

My Journey

Von Willebrand Disease vs. Hemophilia: Key Differences in Symptoms, Causes, and Treatment

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know.

Hemophilia A&B, Von Willebrand Disease

5 Free Period Tracking Apps to Help You Monitor Your Menstrual Cycle

Understanding more about your period can help you have greater control over your health, especially when managing a bleeding disorder.

Women's Bleeding Disorders

Acquired Hemophilia: When Unexpected Bleeding Appears Later in Life

The rare condition usually affects people in their 70s and 80s without warning. Here’s what you need to know.

Adults & Aging, Rare Bleeding Disorders

Ask a Social Worker: “I’m 17 with VWD, and my periods are awful. What can I do if my doctor suggests birth control, but my mom doesn’t want me to take it?”

Heavy periods with a bleeding disorder are common, and there are safe, private options to help teens manage them.

Ask a Social Worker

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control...

Hemophilia A&B, Novel Technologies

Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.

Von Willebrand Disease

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC