HemAware

Featured On HemAware

Ask a Social Worker: How Can People with a Bleeding Disorder Find an Inpatient Substance Use Treatment Program?

A coalition can help you get the care you need for substance use disorder or a mental health issue.
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Clinical Trials for Hemophilia and Other Bleeding Disorders

Learn how clinical trials work and how to find studies that may be right for you.
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3 Critical Conversations to Have with Your HTC Social Worker

Opening up about insurance, loneliness, and other challenges can benefit you. Here are three conversations to have.
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The event brings together medical and musculoskeletal (MSK) professionals, bleeding disorders patients, and community advocates.

Global Focus

A valued and beloved member of NBDF for more than 25 years, Neil Frick passed away unexpectedly in 2024.

NBDF in Action

Qfitlia™ (fitusiran) prophylaxis helps your blood's ability to clot by lowering a protein called antithrombin

For many years, Rodney Dalrymple, of Booneville, Mississippi, has managed his severe hemophilia A with a factor product that he...

Advocacy

At every life stage, a blood or bleeding disorder can lead to new questions and concerns. The Steps for Living...

When Sean Pentz was growing up, his mother made sure he received his infusions of clotting factor three times a...

Taking Charge

In the early 1900s, the average life expectancy for someone with hemophilia was just 13 years. Developing the therapies that...

Hemophilia A&B

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)