HemAware

Featured On HemAware

Period Tracking Apps and Privacy: What Women with Bleeding Disorders Should Know

Menstruation tracking is a valuable tool. Experts say to be vigilant in what information you share.
Read More
Acquired Hemophilia: When Unexpected Bleeding Appears Later in Life

The rare condition usually affects people in their 70s and 80s without warning. Here’s what you need to know.
Read More

Acquired Hemophilia: When Unexpected Bleeding Appears Later in Life
Ask a Social Worker: “I’m 17 with VWD, and my periods are awful. What can I do if my doctor suggests birth control, but my mom doesn’t want me to take it?”

Heavy periods with a bleeding disorder are common, and there are safe, private options to help teens manage them.
Read More

Recent Articles

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control...

Hemophilia A&B, Novel Technologies

Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.

Von Willebrand Disease

The Bleeds Wouldn’t Stop – But This Patient Didn’t Give Up

“I wanted to live my life like there was nothing wrong, but the fear was always there.”

It's Not Too Late to Protect Yourself From the Flu - And Yes, You Can Still Get It!

If you’re feeling under the weather, with a fever and muscle aches, you may have joined the millions who have...

Taking Charge

3 Ways to #ShowYourRare on Rare Disease Day 2018

On Wednesday, February 28, people all over the world will celebrate Rare Disease Day. EURORDIS, a nongovernmental alliance of organizations...

Community in Action

Non-drug methods may help manage bleeding-disorders-related pain

4 Mind-Body Pain Management Techniques to Try

For too many people with a bleeding disorder, pain isn’t well-managed. The landmark Haemophilia Experiences, Results and Opportunities (HERO) international...

Pain Management

Chris Bombardier: Reaching New Heights

How mountaineer Chris Bombardier persevered to become the first person with hemophilia to summit Mount Everest.

Taking Charge, My Journey

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC