HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?

Learn why using your HTC’s pharmacy program can benefit you and your family.
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What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

Taking Charge

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

You’re no stranger to drama: Adapting to changing needs, schedules, and even personalities is part of being a caregiver to...

The Kevin Child Scholarship provides $1,000 to a student with hemophilia who is pursuing higher education

Nikole Scappe, who has von Willebrand disease (VWD), held a fundraiser for the National Hemophilia Foundation in support of the...

My Journey

The National Hemophilia Foundation’s (NHF’s) 69th Annual Meeting in Chicago began with a message of unity. Reflecting on the battles...

NBDF in Action

Finding the right balance when you have a bleeding disorder

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)