HemAware

Featured On HemAware

A Global Victory for People with Hemophilia and VWD

Changes to the World Health Organization’s Essential Medicines List represent a major victory for the bleeding disorders community.
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A Global Victory for People with Hemophilia and VWD
How to Balance Household Responsibilities

A child’s bleeding disorder can strain families. Sharing responsibilities, communicating clearly, and seeking support can help couples stay strong and resilient.
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Meet Two Trusted Bleeding Disorders Influencers on TikTok

Meet two women using TikTok to inspire and help others in the bleeding disorders community.
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Recent Articles

How to Build Resiliency in the Face of Chronic Pain

3 Ways to Build Resilience in the Face of Chronic Pain

Persistent pain may be a part of life when you have a bleeding disorder. Try these strategies to cope.

Taking Charge

Managing Joint Pain as You Age

Joint pain can be a common complaint among older people with bleeding disorders, but exercise and physical therapy help.

Family Matters

How World Federation of Hemophilia USA Cares for the Global Community

WFH USA advances care worldwide through humanitarian aid, training, advocacy, research, and initiatives supporting bleeding disorders communities.

Global Focus

Making It Work

Whether you are in the midst of your career or just starting the job hunt, young adults with bleeding disorders...

Generation Next

Rare Finds

They’re the rarest of the rare: bleeding disorders like platelet storage pool disorder and factor XIII deficiency that affect only...

Community in Action

Taking a Peek at Pharmacokinetic (PK) Studies

Prophylaxis, a treatment regimen of regular factor infusions, ideally prevents bleeding in the average person with a moderate/severe bleeding disorder...

Taking Charge

Doctor looking out from behind lab shelving

Above and Beyond

“THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as...

Advocacy

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC