HemAware

Featured On HemAware

Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?

Learn why using your HTC’s pharmacy program can benefit you and your family.
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What Is a 340B Program and Why Does It Matter for People with Bleeding Disorders?
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Often misdiagnosed, HHT can cause anemia and sometimes organ damage.

Taking Charge

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

You’re no stranger to drama: Adapting to changing needs, schedules, and even personalities is part of being a caregiver to...

Shared decision-making (SDM) is a process in which a patient and their health care team work together to make decisions...

Global Focus

Having a bleeding disorder shouldn’t keep you from seeing the world. Just ask Devin Smith, a recent college graduate in...

Generation Next

With abortion access restricted in many states and sexually transmitted infections (STIs) on the rise nationwide, having a conversation with...

Family Matters

Each year, hundreds of women, girls, and people with the potential to menstruate (WGPPM) who are affected by bleeding disorders...

Chapter Roundup

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)