HemAware

Featured On HemAware

Why Genetic Testing Matters for Girls at Risk for Hemophilia

Girls at risk for hemophilia are often overlooked for genetic testing, which can contribute to delayed diagnosis and care.
Read More

Why Genetic Testing Matters for Girls at Risk for Hemophilia
Bleeding Disorder Self-Care and Self-Advocacy When You’re at College

Follow these tips to successfully manage your condition while you’re away from home and own your own.
Read More

Bleeding Disorder Self-Care and Self-Advocacy When You’re at College
Stroke Prevention for Women with Bleeding Disorders

Women with bleeding disorders face unique stroke risks. Updated guidelines highlight prevention strategies and hormonal treatment considerations.
Read More

Stroke Prevention for Women with Bleeding Disorders

Recent Articles

How NBDF Chapters Are Fueling Future Bleeding Disorders Research

JGP Fellowships empower researchers to study bleeding disorders and build lasting connections with the community they aim to help.

Advocacy

2 Brothers Don’t Let Hemophilia Keep Them from Their Dreams

Twin Scouts with hemophilia tackle challenges and adventures, proving preparation and support can overcome physical limits.

Hemophilia A&B

Risk of Diabetes Increases as People with Bleeding Disorders Age

Aging with a bleeding disorder brings new risks, including diabetes. Here’s how to recognize the symptoms and protect your health.

Taking Charge

An Update on Gene Therapy for Hemophilia

After several decades of research, gene therapy for hemophilia is moving closer to becoming a reality. One of the most...

Novel Technologies

How to Lower Your Risk for Cancer

The great news about improving bleeding disorders care is that people are managing their condition better and living longer. The...

Fitness & Nutrition

NIH State of the Science: A Look Back and a Way Forward

On two rainy days in May 2018, more than 200 researchers, clinicians, pharmaceutical industry representatives, government officials, and patient advocates...

Researcher Profiles

What You Should Know About Ministrokes

Just the word “stroke” is ominous, and for good reason. Strokes are the No. 5 cause of death and a...

Pain Management

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC